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Advisory Committee: Report into the Education of Children with Severe Low Incidence Disabilities

ANNEX G

Riddell Advisory Committee: Information Gathering Exercise

1 The Process

1.1 The purposes of the exercise

1.2 Schools visited

Craighalbert, Cumbernauld

Royal Blind School, Edinburgh

Donaldson's, Edinburgh

East Park, Glasgow

Harmeny, Balerno

Corseford, Howwood

Stanmore House, Lanark

 

1.3 Authorities visited

Edinburgh City and North Lanarkshire, as high users of the grant aided sector

Falkirk and Dumfries & Galloway, as medium users

Aberdeen and Highland, as low users

1.4 Conduct of the interviews

In advance of the meetings, those to be interviewed received copies of the Committee's definition of severe low incidence disabilities and the draft interview schedule. Some interviewees were therefore well prepared and had facts and figures to use in their responses. Others provided the overall picture with less precise detail.

Those interviewed were, without exception, keen to have their views known and gave extended responses to each question posed, often ranging over several of the areas to be covered within the one response. It was also clear that there were certain issues of concern to respondents to which they returned on several occasions. Not all of these were explicitly covered by the schedule. The schedule served to provide the broad context for the interviews and as a checklist to ensure that all the main areas of interest to the Committee were covered, but was rarely followed formally. Although there were two versions of the schedule - one for high users, one for low users - in practice these overlapped, with even high users volunteering information about why they did not make more use of grant aided schools. The summaries prepared from notes and from transcripts of the interviews roughly follow the order set out in the schedules.

1.5 Outcomes

Interviews were recorded on audio tape and handwritten notes were made. Tapes were later transcribed, corrected, and a summary prepared. All of the schools and some of the local authorities provided additional documentation in support of their responses. This final report draws together the main points covered in the course of the interviews. In respect of East Park School, there is no transcript since the tape was subsequently found to have recorded on side B only. Fortunately, school staff had prepared a detailed written response to the questions on the schedule and this was used to supplement the handwritten notes.

In the following report, where comments relate to points made by a particular authority, this is indicated. In other cases, it can be assumed that the point represents views more generally expressed.

2. The Local Authorities

2.1 Preamble

Not all interviewees made a distinction in their answers between grant aided and independent schools (or even state schools in other authorities) unless pressed to do so. The distinction that was made was between local schools and schools outwith the authority.

Some interviewees asked to be reminded which schools were grant aided, several omitting East Park from their list, for example. (None of the authorities visited had pupils at East Park.)

Opinions varied as to whether the growing numbers of children with emotional / behavioural difficulties fall within the definition adopted by the Committee. Perhaps only those requiring extreme measures do.

Present and future use of grant- aided schools

2.2 Policy

International and national policies on inclusion, recent legislation, and the tide of educational and public opinion generally are leading authorities to rethink their policies. Those interviewed now have, or are developing, policies which explicitly state that children should be educated within their own communities except in extreme cases. Local provision is being developed accordingly. The extent to which their resources allow local authorities to apply this policy varies. Some of the variables cited are listed below:

Current models of provision for children with severe low incidence disabilities encompass local mainstream provision with in-school or visiting support, special schools and units; other local authority provision; placements in grant aided and independent schools within the authority, elsewhere in Scotland and in England. Some new models and support mechanisms are being put in place, eg:

2.4 Reducing use of external provision

All authorities said that their use of schools outwith the authority (including grant aided schools) was reducing and likely to reduce further. Some of the reasons given were:

2.5 Continuing use of external provision

All the authorities said that they do make some use of residential schools at some time, and that this occasional use was likely to continue, the above points notwithstanding. This is because:

2.6 Budgetary considerations affecting choice of placement

All interviewees insisted that, in making decisions about placements, the aim is always to find the provision which best suits the needs of the child. They look first at their own provision, then at provision in neighbouring authorities. They then look at the independent sector (including grant aided schools). The criteria governing choice of placement in the independent sector are match-to-need and quality of provision. No school is ever chosen on the basis of cost alone. To this extent the reduced fees at grant aided schools, though welcome, are incidental and have no bearing on the decision. Some other budgetary considerations are seen as more significant:

Note on Fees

There are usually two core fees (day and residential) which reflect provision available to all the children in the school. Charges for additional needs are negotiated with placing authorities.

2.7 Use of Independant Schools

In making decisions about appropriate placements, no distinction is made between independent and grant aided schools. Relative costs are irrelevant.

Apart from Harmeny, which is for primary aged children, all the residential schools dealing with social/emotional/behavioural difficulties are independent. The growing demand for EBD placements means a growing demand for independent schools, although some authorities are developing their own EBD provision (Dumfries & Galloway, Aberdeen).

The courts, when making decisions about placements, tend to favour residential placements, usually in independent schools since it is they who, by and large, provide places for children with emotional behavioural difficulties. The authority has no power to change that decision even if they do not agree with it (Dumfries & Galloway).

2.8 Use of schools outwith Scotland

Schools outwith Scotland are viewed as part of the continuum of provision. If no suitable placement can be found in Scotland, schools in England are considered. There is a great reluctance to send children so far away. The following reasons for doing so were cited:

Perception of Grant-Aided schools

2.9 STRENGTHS

Grant aided schools have an advantage over independent schools in that, nominally at least, they follow national curricular guidelines. Other than that, the strengths of grant aided schools are seen as similar to those of independent schools, namely:

The work of some grant aided schools was appreciated by the authorities which used them:

2.10 Weaknesses

Some of the weakness cited appeared to contradict points which were also offered as strengths. Usually this was due to a perceived discrepancy between policy and practice, or because the range of criteria which authorities use before deciding on such a placement means that they must weigh up the balance of strength/weakness against the particular constellation of needs presented at the time. Sometimes the final decision is seen as a compromise between care and educational needs.

2.11 Centres of excellence

All the authorities expressed doubt that grant aided schools could be considered as centres of excellence. To them they were simply part of the external provision which they could access. Some authorities questioned the equity of selecting some independent schools for subsidy and not others. They affirmed that being a grant aided school was no guarantee of excellence, although some grant aided schools have tended to market themselves as if that was the case. Such claims are felt to be misleading, and a source of some friction between parents and local authorities.

Most of the authorities felt that the role of grant aided schools as national centres of excellence could be improved under certain conditions.

2.12 Outreach

Although the grant-aided schools visited varied in the amount of outreach and in-service work they reported, the authorities visited were in agreement that they received no such services from grant aided schools, other than that which was incidental to the placement of a child in one of the schools. When pressed, some authorities said that they had bought assessment or training from the Royal Blind School, or had exchanged teachers with them.

Those authorities in which grant aided schools are located reported a different sort of relationships with 'their' grant aided schools, though even in Edinburgh, which has three grant aided schools, the nature of the relationship varies from one school to another. Most 'host' authorities are making their in-service opportunities available to grant aided schools and attempting to bring them into their schools support network. The extent to which the reverse occurs was not clear.

Difficulties encountered in making provision

2.13 Changing demands

Grant aided schools cover some specialisms, but not all. There is a growing demand for provision for children at the severe end of the autistic spectrum and for children with emotional/behavioural difficulties. There is a growing demand for places which can accommodate children with high dependency needs, arising from higher infant survival rates. There are increasing demands by parents and children for provision within the community.

2.14 Training

The change in emphasis towards local provision means that authorities have a wider range of training needs which are proving very difficult to meet. This is particularly true in authorities outwith the Central Belt who cannot afford the time and transport costs required for staff to follow a course which requires regular attendance at one of the usual centres. Training of the quality authorities are looking for, in a format they can access, is not always obtainable, or not within Scotland. (Aberdeen is buying hearing impaired training from Birmingham because it offers what they need in distance learning format.)

2.15 Inter-Agency working and budgetary difficulties

Recent legislation, international as well as national is making new demands on authorities. Several authorities drew attention to the Children (Scotland) Act which emphasises the corporate responsibility of authorities. This requires education and social services to work more closely together. In some places organisational mechanisms are in place which are supporting changes in this direction. In others there are still problems arising from placements being made for different reasons by different services, sometimes without consultation.

Inter-agency working can be facilitated or hindered by the financial arrangements which a local authority has in place. These arrangements vary from one authority to another, with education and social work coming to ad hoc agreements where necessary (for example, to allow joint funding of a placement selected because of care needs.)

Some instances quoted during interviews:

2.16 Post-school provision

Major concern was expressed in a number of authorities about the lack of provision for moving pupils on into post-school provision. (A number of the schools share these concerns.)

2.17 Respite, Nursing and Medical care

The absence of provision of respite for respite care in Scotland was an area of considerable concern to the local authority officers interviewed. The educational needs of the children covered by the Committee's remit cannot be divorced from their care needs, yet it is their care needs which are most difficult to meet and which are the most important single reason for choosing residential placements. With the exception of East Park, which in practice serves only the Greater Glasgow area, grant aided schools are open only in term time.

Authorities questioned the extent to which care and medical needs should determine educational provision, and to what extent the educational budget should be used to pay for medical and nursing care.

In addition, advances in medical practice have led to increased infant survival rates which are beginning to place heavier demands on local authorities for intensive care placements.

2.18 Supporting families

Very often, when a residential placement is selected, the reasons for doing so may be more to do with supporting the family than with meeting the educational and/or care needs of the child. This includes taking into account the needs and rights of siblings. These duties are underlined by recent legislation. Current funding arrangements do not adequately take these various needs into account.

National Policy

2.19 Funding arrangements

In terms of choosing the most appropriate placing for a child, there is no difference, in the minds of the local authorities, between grant aided and independent schools. However, authorities differed in their views as to whether funding should continue in the current manner.

2.20 Improvements suggested

Despite the general lack of enthusiasm for the present group of grant aided schools except as placements of last resort, authorities did see an enhanced role for a national group of schools such as the present grant aided ones. They had a number of suggestions as to how grant aided schools might be made more effective.

The current specialisms of grant aided schools does not necessarily match current or future needs. National needs should be reviewed and the range of schools adjusted accordingly. There is a need for a framework to allow stakeholders to consider their needs and how they can be provided (Highland).

Central funding should be applied not to fees reduction but to developments which reflect national priorities.

Instead of large central schools, a number of smaller, more accessible units working closely with authorities would be more in line with current trends. Aberdeen and Dumfries & Galloway gave examples of small-scale local projects in partnership with the Aberlour Trust and National Children's Homes which they saw as the way forward.

The knowledge and skills which schools have acquired should be available nationally to authorities to assist them in making and improving local provision. Aberdeen would like to see a national network of schools, authorities and other agencies which could offer mutual and/or expert support.

The link between theory and practice is a valuable one and should not be lost in any re-organisation. Schools should continue to be the basis for outreach work. For the same reason, local authority support services should always work from a school base.

Whatever system is in place, quality assurance and control of all residential facilities (whether grant aided or independent) must be improved. It is unrealistic to expect local authorities to do this in any realistic or systematic way. Even if local authorities were asked to serve as local agents, national guidelines and support are needed. A standing committee should be set up to oversee such a development (Highland).

Following major national mainstream initiative like 5-14 and Higher Still, North Lanarkshire feels it is time for a major initiative on special educational needs to replace the piecemeal developments of recent years. Falkirk would like young people with complex needs to get a fair deal and not always be at the end of the line.

3. The schools

Characteristics of the schools and school population

3.1 School aims

The substance of schools' aims generally has not changed, but statements of aims have been subject to reviews which have led to rewording or changing of emphasis.

Craighalbert's statements emphasise the Centre's aims not only for the children (therapy and curriculum) but also for parents (working with children), teachers (training in conductive education) and the wider education community (outreach) in Scotland. Children are prepared for integration into mainstream or other settings through contacts with the children's home authority.

Donaldson's statement relates to its aims for the development of pupils and staff. The school has links with mainstream schools for some subjects. Pupils are prepared for entry to mainstream life through preparation for the world of work.

Harmeny's aims for the children emphasise preparing them for reintegration into their natural mainstream setting, including family life. Work is more family centred than previously. Outreach work includes working with families and staff in the schools to which children will be returning.

The Royal Blind School's aims relate to the whole development of their pupils through inter-agency working and community links, preparing them to take their place in the wider community when they leave school. The school's last aim relates to its role as national centre.

East Park has been moving towards a more person centred approach and that that is reflected in the aims as currently stated. The aims relate mainly to the development and care of pupils in the school; statements covering staff development and working with other agencies are intended to facilitate the achievement of those aims.

Corseford's primary aims are concerned with maximising the children's potential through appropriate educational and therapeutic programmes which reflect current thinking and involve parents. The aims include reference to the school's role as a national centre of excellence and to the professional and outreach services it provides.

Stanmore's aims emphasise the individuality of the children and their rights to dignity, respect and freedom from abuse. Partnership with parents and provision of social and recreational activities complement the educational aims of helping pupils to be aware of and respond to their environment, to develop independence and social skills.

3.2 School roll

Craighalbert From 1991 when the school opened, numbers built up to a peak of 41 in 1995. Since then numbers have been falling. Roll now 24.5, which is about half capacity.

Donaldson's The roll has been falling since re-organisation. Currently 52 of whom 4 are in the Speech and Language Unit. Notional capacity around 100.

Harmeny's roll had been dropping prior to re-organisation under new management. Since then it has been rising and accommodation is currently being extended to meet demand.

Royal Blind School Currently 118, of whom 12 are from England. Numbers have risen from 89 in 1995. 24 are day pupils from the Edinburgh area. Projected roll unlikely to fall below 115.

East Park Reduction from 54 to 26 over last decade. Currently 5 in upper primary; 5 or 6 in secondary; 16 in the 17+ age group. Numbers are likely to fall initially as pupils in the post-school group are relocated.

Corseford's roll has fallen slightly in the pre-school unit, and ratio of residential places has fallen, partly due to restrictions on numbers arising from the registration process.

Stanmore is similarly facing a restriction on numbers in residential placements, but numbers overall are steady. The school is operating to capacity in all but the pre-school unit, where they are rising. Five applications have had to be turned away, suggesting the roll could rise if more accommodation were available.

The schools whose rolls are falling attribute this to a preference on the part of the new unitary authorities for educating children locally. Where they are rising, this is attributed to a rise in the incidence of problems in society generally and a shortage of provision to meet the rising level of need.

3.3 Nature of the school population

All the schools report an increase in more 'extreme' or more complex cases. In some cases pupils have been excluded from local authority provision because of challenging behaviour added to complex needs. The three schools which cater for children with cerebral palsy and related disorders see a rising population of children who survived a premature or problematic birth. There are consequently growing numbers of families with children with high levels of dependency who are looking for provision which combines education with intensive therapy and extensive respite care.

3.4 Strengths

Grant aided schools feel that they complement rather than compete with local authority schools. They feel they can offer:

3.5 Future development

All the school are undergoing a period of change. Some concern was expressed about people making judgments based on outdated perceptions.

Craighalbert is putting greater emphasis on the formal curriculum and developing courses leading to qualification in conductive education.

Donaldson's After a difficult period, Donaldson's is developing policy and practice in a number of areas including residential provision, speech and language provision, information and communications technology, mother and toddler group, extension of services to the deaf community in Scotland.

Harmeny is building new accommodation and has plans to develop further its outreach services. It aims, in particular, to make its expertise in pupil behaviour management available to a wider range of professionals who may be dealing with similar if less extreme problems in their own contexts.

The Royal Blind School plans to continue its programme of refurbishment and to extend the accommodation for multi-handicapped pupils. It would like to develop closer ties with VI services throughout Scotland, but particularly the local service. Outreach work is limited by the time school staff have available. It would like to see more centrally funded national posts based in grant aided schools.

East Park Following an adverse inspection great changes are underway. In the short term, extensive refurbishment has improved residential accommodation on site. In the long term the school plans to open several small residential units off site and to extend its outreach service to families in the Greater Glasgow area. It also plans to develop separate accommodation for respite care. Staff would like closer links with local education networks and services, and a national network of schools and services working in the same field.

Corseford is upgrading its residential accommodation and its pre-school services. It hopes to develop social/respite services for a wider range of children. The curriculum is being developed to take account of Higher Still developments.

Stanmore's main problem is with its residential accommodation which is no longer considered to be appropriate. Until the problem is solved numbers of residential places will be limited. After school clubs are being developed, to counteract the reduction in opportunities for community based activities due to tighter regulations on handling, etc.

3.6 Centres of excellence

The schools all see themselves as sources of accumulated knowledge and experience of the conditions in which they specialise, but the extent to which they make these available varies. Craighalbert, Harmeny and the Royal Blind School are very conscious of their role and of the expectations placed on them. Donaldson's and East Park have no programme for sharing their expertise with local authorities. Harmeny and the Royal Blind School are engaged in an extensive range of outreach services and professional links. Craighalbert would like to have a greater role in outreach training, but experiences little demand from Scottish authorities, although there have been requests for training from Sweden and the Faroes. Corseford and Stanmore run courses for professionals from various services and provide advice as requested to local authorities.

Relationship with Local Authorities

3.7 Placing Authorities

East Park draws pupils almost exclusively from authorities which were formally part of Strathclyde Region. The rest draw from all over Scotland, though not all authorities have pupils attending at any one time, given the low incidence of cases. The Royal Blind School and Donaldson's have higher numbers of children from the local area, the 'Lothian' authorities. Harmeny has particular links with the Lothians and Aberdeenshire. Corseford and Stanmore are entering into partnerships with nearby authorities: Corseford to provide social respite and pre-school services and support for children in mainstream; Stanmore to provide transport for pupils using the school.

3.9 Local Authority Reorganisation

All schools report an increase in administration as they now need to communicate with more authorities. It is proving more difficult to keep up to date as there have been frequent changes in authority personnel. Harmeny felt that there have been some gains, too, with new people generating new ideas.

Schools feel that some authorities are now determined not to refer children outwith the authority boundary, to the extent of concealing from parents information about alternative provision. Tighter budgets are thought to be responsible, and a policy of inclusion which ignores the reality of children's needs. On the other hand, some of the unitary authorities previously in Strathclyde Region now have more freedom to decide their own priorities.

3.10 Fees

In general, fees are specified for those services which are common to all pupils. Where a child requires additional services, perhaps for a limited period, these are negotiated with the local authority. Additional charges usually represent the cost of providing the service (eg. behaviour support). Donaldson's residential fees are likely to rise as services are upgraded.

Corseford's and Stanmore's fees, on the other hand, are invariably global on the basis that all services are available to all children when/if they need them. Stanmore pointed to the impossibility of costing individual services to their children, particularly in view of rapidly changing needs.

Harmeny and the Royal Blind School drew attention to the fact that their fees relate to actual services provided for the pupil. Capital and development costs are borne by the Trust. In the case of the Royal Blind School, the Trust also contributes to the cost of extra curricular activities.

3.11 Curriculum

Although there was no specific question about the curriculum it was clear that schools are very conscious of the need to develop the curriculum along national lines. In most schools the elaborated 5-14 curriculum is the means by which educational aims are integrated with children's need for various therapies. It is the school's ability to do this in a holistic way that they see as their greatest strength. A great deal of effort goes into planning the individual programmes which will meet all the needs of each child. Stanmore pointed out that detailed planning is essential if the tiny signs of progress made by some of their children are not to be missed.

The inclusion of all children in the arrangements for Higher Still is widely welcomed. Access courses will allow schools to provide a more age-related curriculum for all children over the age of 14. In schools which provide education for children of all levels of ability there has been extensive use of SCOTVEC and other modules. These will be overtaken by the new National Certificate courses and development work is underway to allow these to be introduced smoothly.

The national picture

3.12 Differences between Grant-Aided and Independant sectors

3.13 Present funding arrangements

The schools wished present funding arrangements to continue. The guarantee of this makes it possible for them to plan ahead in a way that would otherwise be very difficult, since fees from local authorities are bound to fluctuate with demand.

It also allows them to undertake outreach activities which would not be possible if central funding were not available. The Royal Blind School and Harmeny consider central funding to be essential if they are to fulfil and develop their role as national resources.

Corseford and Stanmore felt that the subsidy helped to compensate authorities for the additional costs incurred in providing specialised transport for their children.

3.14 Difficulties

3.15 Advice to Local Authorities

3.16 Advice to the Scottish Executive

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