We have an ambition to build on existing successful programmes collaboratively to create a culture where legal, ethical, and secure data-linkage is accepted and expected
- By fostering collaboration between existing data linkage programmes and initiatives we will co-ordinate what is currently a fragmented landscape of activities to achieve immediate benefits through the sharing of ideas, solutions, best practice and methods.
- By encouraging collaboration in the use and procurement of data linkage ICT across the public sector, we will avoid unnecessary duplication and so reduce purchasing and running costs.
- By increasing the value of datasets, increasing the wealth of good practice and experience in data linkage research, and demonstrating that Scotland is a world-leader in this field, we will continue to encourage research investment into Scotland.
We have an ambition to minimise the risks to privacy and enhance transparency, by driving up standards in data sharing and linkage procedures
- By recommending a set of guiding principles for all data linkage activity we will both raise standards and create a clear and consistent approach to data linkage across Scotland.
- By working with the Information Commissioner’s Office to increase the understanding of the Data Protection Act and other legislation across all those involved in linkage activities we will encourage respect for privacy and proportionate and effective approaches to mitigating privacy risks
- By encouraging transparency, openness and public involvement in decision making we will increase public understanding about how and why personal data are used for statistical and research purposes, and ensure the public value of research involving linkage methods
- By co-ordinating and harmonising data access and approval processes across sectors, without adding layers of bureaucracy, we will streamline the establishment and management of data linkage projects
We have an ambition to fully realise the benefits that can be achieved through data-linkage to maximise the value of existing data
- By enhancing the data standards and statistical capacity we will improve the quality of data that exists and make advances on the evidence base, particularly in terms of a joined-up understanding of how outcomes are achieved, allowing for more informed spending on public services and early interventions that save money in the long run.
We will acheive these ambitions through delivering the Data Linkage Framework. The framework is composed of four blocks:
- The Guiding Principles to assist data controllers and decision makers (e.g. ethics committees, privacy committees, data access panels) take a proportionate approach to managing the risks inherent in any data linkage;
- A Privacy Advisory and Ethics Committee to advise on data sharing and linkage and associated ethical, legal and social issues;
- A Data Access and Linking Service to support researchers and data custodians develop legal, ethical and practical linkage projects, provide separated indexing and linking functions for cross-sectoral data, and secure access for analysis;
- The Data Management Board and Data Linkage Framework Board (formally the Steering Group) to oversee the strategic direction of the Linkage Centre and Advisory Committee, ensuring a joined-up approach with other major developments in Scotland.
All elements of the framework will both facilitate and rely on collaborative working, sharing of best practice and harmonisation of activity across the network of experts and facilities in Scotland.