| Description | This report presents the findings from the ‘Building on the Experiences of Children and Young People’s component of Better Together Scotland’s Patient Experience Programme. It explores aspects of health care that are most important to children and young people who use NHS services in Scotland. The purpose of this exploratory study with children and young people was to identify research topics and methodologies appropriate for further research. |
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| ISBN | 9780755975662 (Web Only) |
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| Official Print Publication Date | June 2009 |
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| Website Publication Date | June 16, 2009 |
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Report No. 4/2009
Nicola Coates-Dutton and Sarah Cunningham-Burley, Centre for Research on Families and Relationships, The University of Edinburgh
ISBN 978 0 7559 7566 2 (Web only publication)
This document is also available in pdf format (780k)
Link to related website: www.bettertogetherscotland.com
Contents
ACKNOWLEDGEMENT
EXECUTIVE SUMMARY
INTRODUCTION
METHODS
METHODOLOGICAL LESSONS LEARNED
MAIN FINDINGS
Access and Waiting
Better Information about health and healthcare
Environmental Needs in Health Care Settings
Building Relationships and Trusting Professionals
Emotional Impact of Accessing Health Care
22. The most common feeling described by the children and young people when they described what it felt like to go to hospital or visit the doctor was fear.
23. The kind of things that made them scared or upset included injections and treatment, surgery, unfriendly staff, frightening posters, seeing ill patients, seeing siblings in hospital or being left alone by their mum or dad.
24. They also had anticipatory fears of health care setting and encounters.
Involvement in Decisions and Control over Choices
CONCLUSION
CHAPTER ONE: INTRODUCTION
OUTLINE OF THE REPORT
CHAPTER TWO: METHODS
INTRODUCTION
RESEARCHING WITH CHILDREN
RESEARCH ETHICS
THE FOCUS GROUPS AND STUDY PARTICIPANTS
THE TOPIC GUIDES AND DISCUSSIONS
ANALYSIS AND REPORTING FINDINGS
SUMMARY
CHAPTER THREE: METHODOLOGICAL LESSONS LEARNED
INTRODUCTION
SIZE AND NATURE OF THE FOCUS GROUPS
RESEARCH ACTIVITIES
INVOLVING CHILDREN AND YOUNG PEOPLE WITH CONSIDERABLE EXPERIENCE OF HEALTH CARE
INVOLVING CHILDREN AND YOUNG PEOPLE THROUGH THE BETTER TOGETHER WEBSITE
SUMMARY
CHAPTER FOUR: ACCESS AND WAITING
INTRODUCTION
MAKING AN APPOINTMENT
CAR PARKING
WHEELCHAIR ACCESS
THE WAITING ROOM
THE TOYS, ACTIVITIES AND MAGAZINES FOR 'THE PEOPLE IN THE MIDDLE' IN THE WAITING ROOM
DÉCOR IN THE WAITING ROOM
HOW LONG THEY HAD TO WAIT
THE INFORMATION AVAILABLE IN THE WAITING ROOM
SENSE STIMULATION IN THE WAITING ROOM - SMELLS, SOUNDS, SIGHTS, MOTION, AND FEELINGS
WHAT PUTS YOUNG PEOPLE OFF GOING TO THE DOCTOR'S
SUMMARY
CHAPTER FIVE: BETTER INFORMATION ON HEALTH AND HEALTHCARE
INTRODUCTION
OPPORTUNITY TO ASK QUESTIONS AT THE DOCTOR OR HOSPITAL
YOUNG PEOPLE - POTENTIAL HEALTH INFORMATION GAPS
HEALTH INFORMATION LEAFLETS FOR CHILDREN AND YOUNG PEOPLE
YOUNG PEOPLE AND HEALTH INFORMATION BY NEW MEDIA
NHS 24 AND YOUNG SCOT
DO YOUNG PEOPLE CONSULT WITH THE PHARMACIST?
WHAT THE CHILDREN AND YOUNG PEOPLE WOULD LIKE TO SEE ON A WEBSITE
SUMMARY
CHAPTER SIX: ENVIRONMENTAL NEEDS OF CHILDREN AND YOUNG PEOPLE IN HEALTH CARE SETTINGS: A COMFORTABLE AND AGE-APPROPRIATE PLACE TO BE?
INTRODUCTION
COMFORT
FOOD
SOUNDS
SIGHTS
SMELLS
WHAT WOULD BE AN AGE-APPROPRIATE SETTING?
Toys and Activities
Décor
Treatment by staff
Young People - a Teenage Unit in a Children's Hospital?
SUMMARY
CHAPTER SEVEN: BUILDING RELATIONSHIPS AND TRUSTING PROFESSIONALS
INTRODUCTION
The doctor as healer
Good communication and friendly
Treats associated with the doctor
Ideal doctor
NOT SO GOOD THINGS ABOUT DOCTORS
Treatment
Communication and friendliness
GOOD THINGS ABOUT NURSES
NOT SO GOOD THINGS ABOUT NURSES
THE DENTIST
THE ORTHOTIST
THE PHYSIOTHERAPIST
CONFIDENTIALITY
SUMMARY
CHAPTER EIGHT: EMOTIONAL IMPACT OF ACCESSING HEALTHCARE AND INVOLVEMENT IN DECISIONS AND CONTROL OVER CHOICES
INTRODUCTION
FEAR AND WORRY
WHAT THE CHILDREN AND YOUNG PEOPLE WANT TO SAY TO THE 'PERSON IN CHARGE' OF THE NHS
Age appropriate things to do
Waiting and access
Staff and relationships
Hospitals
Good and bad aspects of the NHS
SUMMARY
CHAPTER NINE: CONCLUSIONS
SIX DOMAINS OF EXPERIENCE
Access and waiting
Better information about health and healthcare
Environmental needs in health care
Building relationships and trusting professionals
Emotional impact of accessing health care
Involvement in decisions and control of choices
DISCUSSION OF FINDINGS
METHODOLOGICAL LESSONS LEARNED
CONCLUSION
REFERENCES
ANNEX 1 - INFORMATION LEAFLETS AND CONSENT FORMS
ANNEX 2: TOPIC GUIDES
ANNEX 3: WORD SHOWER AND OUR WORDS AND PICTURES
ANNEX 4: DREAM HOSPITAL
The views expressed in this report are those of the researcher and
do not necessarily represent those of the Department or Scottish Ministers.
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