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ANNEX H: Ideas for the whole system
This appendix sets out suggestions of actions that should be taken across a local authority to improve the opportunities and quality of life for people with autism spectrum disorder. The headings for each section also indicate who should be leading a review on that topic.
The action blocks are interdependent and of equal value. It is likely that each group leading a review would identify further actions relevant to their own local services.
There are a large number of suggestions made in these blocks. There may be too many to attempt at once. However this is intended as a resource to enable you to identify and prioritise the key issues that need to be addressed in your area.
It is clear from the prevalence figures in Appendix E, and the numbers known to community care services, that meeting the needs of the population of people with autism spectrum disorders has to be considered across all community services.
The action blocks and corresponding references have also been included as stand alone pages, in the pocket at the back of this document. These can be distributed to the relevant areas for their information and to inform the development of action plans.
Health Services
Additional resources on health
For information about work that is promoting wellbeing in Scotland, see www.wellscotland.info
Better Health Better Care, Edinburgh, Scottish Government (2007)
The same as you? review of services for people with learning disabilities, Scottish Executive (2000)
Autistic Spectrum Disorders Needs Assessment Report, Public Health Institute of Scotland (2001)
Sign Guidelines - Assessment, diagnosis and clinical interventions for children and young people with autism spectrum disorders, NHS Quality Improvement Scotland (2007)
Independent Advocacy: A Guide for Commissioners, Scottish Executive (2001)
Health Needs Assessment Report - People with Learning Disabilities in Scotland, NHS Health Scotland (2004)
Background evidence for the DRC's formal investigation into health inequalities experienced by people with learning disabilities or mental health problems, Disability Rights Commission (2006)
Promoting Health, Supporting Inclusion: The national review of the contribution of all nurses and midwives to the care and support of people with learning disabilities, Scottish Executive (2002)
Autism Spectrum Disorders: Identification, Education and Treatment, edited by Dianne Zager (2004) ISBN 080584578X
You can make a difference: Improving hospital services for disabled people, Equality & Human Rights Commission
The Pathway to Care for children with autism spectrum disorders (aged 0 to 12 years), C Brogan, National Autistic Society (2001)
MRC Review of Autism Research Epidemiology and Causes, MRC (2001)
Social Care Services
Additional resources on social care
For information about work that is promoting wellbeing in Scotland, see www.wellscotland.info
Better Health Better Care, Scottish Government (2007)
The same as you? review of services for people with learning disabilities, Scottish Executive (2000)
7 Step Individual Commissioning Pathway toolkit, Joint Improvement Team
http://www.jitscotland.org.uk/knowledge-bank/toolkits/improving.html
Relentless Optimism - Creative Commissioning for Personalised Care, Report of a seminar held by the Commission for Social Care Inspection on 18 May 2006. Commission for Social Care Inspection September 2006
Independent Advocacy: A Guide for Commissioners Scottish Executive (2001)
On the Borderline: People with learning disabilities and/or autistic spectrum disorders in secure, forensic and other specialist settings (Assessment of need and care planning) Scottish Executive (2004)
Housing
Additional resources on housing
Chartered Institute of Housing (1999) Housing and services for people with support needs - good practice briefing, Coventry: Chartered Institute of Housing
Harker, M. and King, N. (2004) Tomorrow's big problem: housing options for people with autism. A guide for service commissioners, providers and families, National Autistic Society
http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=544&a=5134
Morris S (2002) A Life More Ordinary: The pursuit of quality in supported living, Federation of Local Supported Living Groups. Available at www.supported-living.org/docs/LMO.pdf
Watson L and Tarpey M, (1998) Pick and mix: developing flexible housing choices in community care, Coventry: Chartered Institute of Housing
Bicknell A., Independent living for adults with autism and Asperger syndrome: a guide for families of people with autistic spectrum disorders, NAS: London, 1999, p5 Barnard, J. et al
Ignored or Ineligible? The reality for adults with autism spectrum disorders, NAS: London, 2001.
For housing support services access www.thehousekey.org.
On the Borderline: People with learning disabilities and/or autistic spectrum disorders in secure, forensic and other specialist settings (Assessment of need and care planning) Scottish Executive (2004)
Culture, Leisure and Recreation
Additional resources on cultural, leisure and recreational activities
Orsmond Gael, Krauss Marty, Seltzer Marsha ( 2004) Peer relationships and social and recreational activities among adolescents and adults with autism, Journal of Autism and Developmental Disorders, Vol 34, Number 3 - June 2004
Howlin P (2000) Outcome in adult life for more able individuals with Autism or Asperger Syndrome, Autism 4 pp 63-83
Moon M (1994) Making school and community recreation fun for everyone: Places and ways to integrate, Baltimore: Paul H Brookes Publishing Co
Scottish Executive (2006) Quality of life and wellbeing: Measuring the benefits of culture and sports: literature review and thinkpiece, Edinburgh: Scottish Executive
Goodley D and Moore M (2002) Disability arts against exclusion, Kidderminster: British Institute of Learning Disabilities
Bates P and Davis F (2004) Social capital, social inclusion and services for people with learning disabilities, Disability and Society Vol 19, No 3, pp196-207
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