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Listen
2. What do people want?
In their groups people talked about the issues that really matter to them as people living with long-term conditions, as unpaid carers, as professionals and as policy makers.
We've summarised the discussions under five main headings. These start by seeing people living with long-term conditions and unpaid carers as being at the centre of services. They go on to talk about how services can be delivered in a way that keeps the focus on the person.
- Involving people and supporting self-management
- Communication and information
- Services working together
- Professional practice and development
- Providing services
As well as making recommendations about how services should be designed and delivered, people also stressed that they need to be involved at local and national level in making sure change actually happens.
"Why does every hospital not carry out user surveys as part of a service review... and actually believe what people say?"
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