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Chapter 5: Service contacts in the 6 months
prior to death
What is in this chapter? The information
below sets out the nature and frequency of contact with
services and identifies the overall patterns of these. The
information described in this section should be regarded,
and read, as population trends rather than the contact
patterns of individual cases.
Where did the information come from? Data
were drawn from different sources to build a comprehensive
picture:
1. Records of care/interventions were identified and
accessed for 305 (96%) people who
ever had contact with services. No records were
available for 12 cases. Of the 305 for whom records were
available, 237 (78%) had had contact with one or more
services during the 6 months prior to their death and
information was extracted from the records of all services
known to be involved in their care. For the remaining 68
people, their casefiles showed no record of any service
contact in the 6 months prior to their death.
2. Information was collected from hospital returns data
(
ISD databases SMR00/01/04) identifying
227 (72%) cases who received hospital care in the year
prior to their death.
3. Two hundred and seventy-four of the 317 drug deaths
(86%) were known to the Scottish Criminal Records
Office.
4. Seventy of the drug-related deaths had been in a
Scottish Prison in the six months prior to death and
SPS files were accessed to add depth to
the
CSC dataset. 34 people had been offered
formal Transitional Care and information was made available
regarding whether this was accessed and outcome.
Introduction
"Integrated Care for Drug Users, Principles and
Practice" (
EIU 2002) acknowledges that people with
drug problems often have multiple needs and do not access
services in a uniform manner. They will move in and out of
contact as needs arise, accessing a range of different
agencies in an ad-hoc way. This poses difficulties for
services in terms of ensuring that they give an appropriate
response to meet the user's needs and collaborate
effectively with partner agencies to maximise outcomes.
This section considers information from diverse sources to
help understand this process and identify potential areas
where a timely intervention may impact on outcome.
Mapping contact with health and social care
services
It is recognised that being engaged in a process of care
and treatment has a positive impact on outcomes, including
drug-related deaths. In order to co-ordinate and integrate
the care that is provided to individuals it is important to
recognise the extent to which people access more than one
service and the various interventions which they may be
accessing from these services.
Of those 305 people who died of drug-related causes in
Scotland in 2003 and for whom records were available, 68
people had no recorded service contacts at all during the
six months prior to death. Data from the health, social
work and independent sector casefiles of the 237 people who
had been in contact with services during the six months
prior to death were examined to determine the extent of
service involvement, including their degree of engagement,
the number of services involved (including whether these
were generic or specialist) and the purpose of attending -
including the types of interventions received.
Degree of engagement - time intervals between
last service contact and occasion of drug-related
death
The table below (Table 5.1) describes the number of
people who were in contact with any service during the six
months prior to death and the time interval between last
recorded contact with services and death. Of the 237 cases
that had contact with services in the 6 months prior to
their death, 136 (57%) were still in contact with at least
one service within one month of their death.
Table 5.1: Number of cases in contact with any
service at any month in 6 months prior to death
(n=237)
Number of cases | Month 1
(Prior to death) | Month 2 | Month 3 | Month 4 | Month 5 | Month 6 |
|---|
In contact with services | 136 | 186 | 213 | 226 | 233 | 237 |
|---|
Last contact with services | 136 | 50 | 27 | 13 | 7 | 4 |
|---|
Number of agencies involved
Table 5.2 shows the number of agencies accessed by
individuals in each of the six months prior to death. This
table does not describe multiple contacts with any single
agency. In their last month prior to death 136 people had
175 agency contacts on at least one occasion. During this
period, over half of those who experienced a drug-related
death in 2003 had documented contact with only one service.
Some accessed many services though none accessed more than
8 services in any one month.
Table 5.2: Number of agencies accessed by each
person
Number of individual agencies
accessed by each person | Month 1 Prior to death
(n=136) | Month 2
Prior to death
(n=186) | Month 3
Prior to death
(n=213) | Month 4
Prior to death
(n=226) | Month 5
Prior to death
(n=233) | Month 6
Prior to death
(n=237) |
|---|
1 | 104 | 116 | 119 | 106 | 107 | 107 |
|---|
2 | 50 | 60 | 58 | 63 | 59 | 54 |
|---|
3 | 16 | 22 | 23 | 24 | 25 | 30 |
|---|
4 | 4 | 9 | 5 | 4 | 5 | 7 |
|---|
5 | 1 | 4 | 3 | 6 | 4 | 4 |
|---|
6 | 0 | 0 | 0 | 4 | 1 | 1 |
|---|
7 | 0 | 3 | 0 | 1 | 0 | 1 |
|---|
8 | 0 | 1 | 1 | 1 | 0 | 0 |
|---|
Total | 175 | 215 | 209 | 209 | 201 | 204 |
|---|
Services used
Table 5.3 shows the main services accessed in each
NHS Board area at any point during the
six months prior to death. The list of services is not
exhaustive -
i.e. people also had contact with additional
agencies during this period, but in very small numbers. The
table illustrates that the pattern of contact is not
uniform across Scotland, with different services in each
area apparently having more contact with this group. This
may reflect the local pattern of services available.
Some patterns do appear across Scotland as a whole.
Significant contact was with general practitioners (
GPs), with 183 (77%) of all those in
contact with any service accessing
GPs during this period. General
Practitioners may have some formal links with specialist
services through "shared care" arrangements. In most areas,
the majority of contact was not with specialist drug
services but with generic providers. Over all only 40 (17%)
were known to specialist services, while in most areas
there were significant contacts with psychiatric services
(41 people, 17%), acute services - including Accident &
Emergency (59 people, 22%) and
NHS outpatients of various types (37
people, 15%).
In total, 71 (30%) were known to Social Work over all,
though one area (
NHS Glasgow) is responsible for over
half of all Social Work contacts identified. In most other
areas there was limited Social Work contact recorded. The
Glasgow data regarding Social Work teams allows a break
down of specialist/generic involvement. This shows that, of
the 42 people in contact with Social Work, 11 were being
seen by a "generic" team, four by the "homelessness" team
and 10 by Criminal Justice. Only 17 (40%) were being seen
by specialist drug & alcohol Social Work staff.
Organisation of Social Work services will vary from area to
area.
Table 5.3: Number of drug-related deaths
accessing specific services during 6 months prior to
death by
NHS Board area (n=237)
| GP & Primary Care
team | Social Work | Psychiatry | Acute services (&
A&E) | NHS
Out-patients | Specialist drug & alcohol
services | Voluntary sector | Residential |
|---|
Argyll & Clyde | 17 | 3 | 0 | 7 | 2 | 4 | 1 | 0 |
|---|
Ayrshire & Arran | 10 | 3 | 7 | 2 | 1 | 5 | 3 | 1 |
|---|
Borders | 1 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
|---|
Dumfries & Galloway | 3 | 0 | 2 | 2 | 1 | 0 | 0 | 1 |
|---|
Fife | 7 | 3 | 9 | 4 | 2 | 1 | 0 | 0 |
|---|
Forth Valley | 9 | 1 | 1 | 6 | 1 | 4 | 0 | 0 |
|---|
Grampian | 23 | 9 | 4 | 2 | 9 | 0 | 0 | 1 |
|---|
Greater Glasgow | 57 | 42 | 0 | 17 | 11 | 6 | 4 | 4 |
|---|
Highland | 3 | 0 | 3 | 0 | 0 | 1 | 1 | 0 |
|---|
Lanarkshire | 14 | 8 | 7 | 7 | 2 | 6 | 0 | 0 |
|---|
Lothian | 25 | 10 | 4 | 8 | 5 | 8 | 0 | 2 |
|---|
Tayside | 14 | 0 | 3 | 4 | 3 | 3 | 0 | 0 |
|---|
Western Isles | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
|---|
Scotland | 183 | 71 | 41 | 59 | 37 | 40 | 9 | 9 |
|---|
Purpose of contacts
Table 5.4 describes the main reasons for contact with
services in each of the six months prior to death. It
identifies the number of times a particular type of contact
was made by different people in any one month. It does not
capture multiple interventions delivered to the same person
in the same month,
e.g. one person attending for a "medical
consultation" three times in the month before death would
only be noted as one event.
Table 5.4: Reasons for contact with services in
the 6 months prior to death.
Reason for contact | Contacts in
Month 1 | Contacts in
Month 2 | Contacts in
Month 3 | Contacts in
Month 4 | Contacts in
Month 5 | Contacts in
Month 6 | Total
contacts over 6 months |
|---|
Medical consultation | 73 | 101 | 98 | 105 | 98 | 103 | 578 |
|---|
Medical emergency (Including A&E) | 13 | 12 | 6 | 6 | 12 | 8 | 57 |
|---|
Other medical care | 5 | 8 | 5 | 8 | 6 | 7 | 39 |
|---|
Substance misuse assessment | 0 | 6 | 2 | 5 | 3 | 2 | 18 |
|---|
Detoxification | 0 | 6 | 5 | 2 | 4 | 1 | 18 |
|---|
Specialist substitution prescribing
programme | 8 | 9 | 11 | 11 | 8 | 10 | 57 |
|---|
Out-patient psychiatry | 8 | 13 | 15 | 12 | 10 | 12 | 70 |
|---|
Emergency psychiatric care | 5 | 2 | 4 | 3 | 2 | 4 | 20 |
|---|
Psychiatric hospitalisation | 0 | 5 | 4 | 4 | 2 | 1 | 16 |
|---|
Case management (Social Work) | 29 | 29 | 27 | 29 | 28 | 24 | 166 |
|---|
Psychosocial interventions including
Counselling | 8 | 3 | 6 | 7 | 11 | 8 | 43 |
|---|
Other | 32 | 23 | 28 | 22 | 19 | 27 | 151 |
|---|
Total | 181 | 217 | 211 | 214 | 203 | 207 | 1233 |
|---|
Forty-seven per cent (47%) of all contacts recorded in
the six months prior to their death were "medical
consultations", the majority with
GPs in primary care. Only 5% of contacts
were described as "specialist substitution prescribing
programmes". However, 66 people (24% of those in contact
with services) were prescribed methadone during the 6
months prior to death, with 40 still prescribed at the time
of death. 80% of all information on methadone prescribing
was extracted from General Practitioners' notes, showing
that, for the drug related death population, the majority
of methadone prescribing was in the primary care setting
with a significant proportion of these "medical
consultations" relating to replacement prescribing. "Shared
care" schemes operating throughout Scotland are modelled on
the premise that stabilised drug users are generally seen
in general practice and those whose drug use is more
chaotic or problematic are cared for by specialist drug
services. The data presented here may imply that this type
of "shared care" model is not operating in practice in many
areas of Scotland as it would be expected that the more
chaotic users (who would be attending the "specialist
services" in such a model) would be more at risk of
drug-related death.
In Scotland, General Practitioners have taken on a more
prominent leading role in the delivery of methadone
replacement prescribing - reflecting a lack of capacity and
waiting lists in specialist services. This may explain the
apparently skewed balance of prescribers in this
investigation.
"Case management" - delivered by Social Work - accounted
for 12% of contacts while counselling - supposedly a key
element of care for drug misusers in treatment - accounted
for only 3% of all contacts.
Appendix 4 contains a list of
all contacts defined as "other" in Table A4.1.
It is notable that the majority of the contacts (other
than with a doctor or social worker) appear to be in
emergency situations (
A&E, emergency psychiatric
care).
Case study Young adult male. Post mortem states he died
of cocaine intoxication. Diagnosed as suffering
from paranoid schizophrenia for 15 years
resulting in three admissions to psychiatric
hospital. He was also known to be opiate
dependent and a user of cocaine and crack
cocaine. He was an IV drug user. He was
unemployed having never worked, living on
benefits in his own flat. The 6 months prior to his death were
dominated by residential treatments. He was
admitted to a residential rehabilitation
facility for 4 months before discharge and
immediate admission to another. On the day of
his death, he self-discharged, returned home
and injected cocaine in the presence of an
acquaintance. He was found dead the next
morning. He was under the Care Programme Approach and
was present at two care management meetings 4
and 6 months prior to death. These were
attended by forensic psychiatry and the
homeless social work team all of whom were
involved in his ongoing management. The police
report suggests he was in receipt of a depot
anti-psychotic drug - but toxicology does not
show this to have been present at death. |
Interpretation
This is not an unknown population. Only 68 (21%) of
those who died of drug-related causes in Scotland in 2003
and for whom records were available had had no recorded
contact with any agency in the six months prior to death.
Of the 237 who had service contact, many were accessing
multiple services and more than 50% were still in contact
with at least one agency at the time of death. The agencies
involved include specialist services, but contact was
dominated by attendances at generic services - mainly
general practitioners but also psychiatric services, acute
hospital services (including Accident & Emergency),
NHS out-patients and social work.
Contacts were often for the purpose of delivering medical
interventions or a response to an emergency situation.
There is a notable lack of recorded contact for delivery of
counselling services or other psychosocial interventions.
This pattern of contact implies that, if services are to
have an impact on drug deaths, this will have to reflect
activity in the more generic health and social care
settings - areas where concern regarding drug use may not
be the priority of the professional concerned during that
contact.
More detailed analysis of the specific treatment
received from health services is contained in the next
section.
Contact with Health Services
This section describes in more detail the care of
individuals who had received medical treatment for drug
misuse and, when possible, compares the clinical care
received by those who were in treatment with national
clinical guidelines and considers whether there was
anything that "services" could have done, or could do in
the future, to prevent death. Data were extracted from
national
ISD databases relating to episodes of
health care and, when these data are used, the definitions
reflect those under which these data were recorded by the
staff responsible for their care.
Hospital admissions
Initial analysis of data obtained from selected
ISD databases (
SMR 00/01/04) indicates that in the year
prior to death there were 1435 recorded episodes of
hospital care for this population (n=317). This does not
include attendances at Accident & Emergency Departments
not resulting in admission, as
ISD does not collect these data. Of
these 1435 episodes, 734 resulted in hospital admissions
(51%), of which 198 (27%) were discharged the same day, 220
(30%) after one day and a further 95 (13%) after two days.
Five hundred and thirteen (70%) of all hospital admissions
for this population were for two days or less.
SMR returns recorded general reasons for
admission for only 340 of these 734 episodes: 296 to a
general hospital and 44 psychiatric admissions. Reasons for
admission were not recorded for the remaining 394
admissions. The majority of general hospital admissions for
which this information was available were classed by
ISD as having been for "observation,
treatment or investigation" although 49 (17%) were for
"self-inflicted injury" and a further 26 (9%) for
"accidental or other injury".
Psychiatric treatment
In the six months prior to death 86 (36%) people were
prescribed anti-depressant medication. Of these, 75 (87%)
were prescribed these medications by their general
practitioner. Twenty people were prescribed anti-psychotic
drugs with two receiving Clozapine (a drug requiring close
review by mental health services) and one received a depot
antipsychotic which would require regular contact with
professionals to administer. Table 5.5 sets out the drugs
prescribed.
Table 5.5: Medical treatments for psychiatric
disorders
Drug prescribed | Number of people |
|---|
Type of drug | Drug name | Trade name |
|---|
Antidepressants | Venlafaxine | Efexor | 18 |
|---|
Citalopram | Cipramil | 18 |
Fluoxetine | Prozac | 15 |
Trazodone | Molipaxin | 10 |
Paroxetine | Seroxat | 9 |
Amitriptyline | Tryptizol | 9 |
Dothiepin | Prothiaden | 6 |
Doxepin | Sinequan | 1 |
Antipsychotics | Olanzapine | Zyprexa | 9 |
|---|
Haloperidol | Haldol | 3 |
Chlorpromazine | Largactil | 3 |
Clozapine | Clorazil | 2 |
Zuclopenthixol | Clopixol | 1 |
Flupenthixol | Depixol | 1 |
Trifluoperazine | Stelazine | 1 |
In the casefiles of the 273 people who had been in
contact with services during the six months prior to death,
83 had at least one episode of psychiatric care recorded.
Casefiles show that five people had records of at least
five different treatment episodes in the last six
months.
SMR04 data shows that 44 of the psychiatric contacts
made by these 83 people required hospital admission.
Records were available for 28 of the psychiatric contacts.
Table 5.6 sets out the nature of these 28 contacts. The
definitions reflect those recorded by the clinicians
delivering the care.
Table 5.6: Psychiatric service
contacts
Nature of contacts | Number of contacts |
|---|
Psychiatric assessment | 4 |
|---|
(Thoughts of) Self harm | 4 |
|---|
Anxiety | 3 |
|---|
Paranoid schizophrenia | 3 |
|---|
Personality disorder | 3 |
|---|
Depression | 2 |
|---|
Suicidal ideation | 2 |
|---|
Mental health review | 2 |
|---|
Substance misuse | 1 |
|---|
Schizophrenia | 1 |
|---|
Emergency psychiatric care | 1 |
|---|
Alcohol detoxification | 1 |
|---|
Paranoid delusions | 1 |
|---|
In
SMR04, aftercare details are recorded
for the 44 episodes of psychiatric care that required
hospital admission, relating to the care of 29 people. Of
these episodes, 22 (50%) cited '
GP' as the planned aftercare
arrangements, nine (20%) cited outpatient clinics, four
(9%) community care teams and two psychiatric day
hospitals. Two were transferred to psychiatric wards for
ongoing care. No details were recorded for the remaining
eight episodes. No referrals to Social Work or any
voluntary agency were recorded in any casefiles following
these episodes of care.
Previous non-fatal overdose
One hundred and thirty eight (50%) of the people who
were in contact with services in the six months prior to
death had details of previous overdoses recorded in their
notes. The tables below (Tables 5.7 and 5.8) set out the
assessed nature (
i.e. accidental or deliberate) and frequency
of overdoses and the treatment received for each overdose
event. In some cases, other than to mention that an
overdose had occurred, no specific details were
available.
The tables show that four people had been treated for at
least four non-fatal overdoses in the six months prior to
death. The number seen at A&E exceeds the number seen
by ambulances indicating that some overdoses arrived at
A&E departments via means other than ambulance
conveyance. This suggests that ambulance records of
overdose attendances underestimate the total number of
overdoses attended to by professional staff. Of the total
number of people admitted into hospital for overdose, 44
(57%) were psychiatrically assessed, and in most cases
(95%), psychiatric follow-up was arranged. Of these,
however, less than half (43%) presented for follow-up and
no further action was recorded for those who did not
attend.
Table 5.7: Number of people experiencing
non-fatal overdoses by type (n=118)
Number of overdoses | At least 1 | 1 | 2 | 3 or more | Type 1 | Type 2 | N/K |
|---|
Ever | 138 | 64 | 29 | 37 | 43 | 51 | 44 |
|---|
Last 6 months | 31 | 21 | 8 | 2 | 9 | 13 | 9 |
|---|
Type 1 - accidental
Type 2 - deliberate
Table 5.8: Treatment received by episode of
non-fatal overdose
| OD before death | Ambulance called | Treated at scene | Seen at
A&E | Admitted to hospital | Psychiatric diagnosis | Follow-up arranged | Attended? |
|---|
| Yes | No | Yes | No | Yes | No | Yes | No | Yes | No | Yes | No | Yes | No |
|---|
Last | 27 | 2 | 7 | 8 | 59 | 1 | 50 | 8 | 23 | 14 | 21 | 21 | 7 | 9 |
|---|
2
nd Last | 14 | 1 | 5 | 1 | 29 | 0 | 16 | 4 | 13 | 8 | 12 | 10 | 4 | 3 |
|---|
3
rd Last | 6 | 0 | 1 | 1 | 12 | 0 | 9 | 1 | 6 | 1 | 6 | 2 | 5 | 0 |
|---|
4
th Last | 1 | 1 | 1 | 0 | 4 | 0 | 2 | 1 | 2 | 1 | 3 | 0 | 2 | 1 |
|---|
Total | 48 | 4 | 14 | 10 | 104 | 1 | 77 | 14 | 44 | 24 | 42 | 33 | 18 | 13 |
|---|
Specialist treatment for drug or alcohol
problem in the last 6 months
Data obtained from casefiles indicated that in the six
months prior to death, only 38 (12%) of the 317 people had
at least one contact with a specialist drug misuse service.
Details relating to the majority of these contacts were not
routinely noted in clinical records. Table 5.9 below
summarises the interventions for the 47 recorded contacts
by these 38 people.
Table 5.9: Type and frequency of specialist
drug treatment contact (n=38)
Intervention | Number of contacts |
|---|
Drug dependence | 10 |
|---|
Assessment | 8 |
|---|
Drug detoxification | 8 |
|---|
Did not attend | 4 |
|---|
Referral | 4 |
|---|
Alcohol detoxification | 3 |
|---|
Residential rehabilitation | 3 |
|---|
Initial contact | 2 |
|---|
Treatment for hallucinations | 1 |
|---|
Methadone reduction programme | 1 |
|---|
Alcoholics Anonymous | 1 |
|---|
Day hospital attendance | 1 |
|---|
Crisis intervention | 1 |
|---|
Total | 47 |
|---|
Medical treatment for a drug problem
There is a relationship between dose and outcome in
methadone prescribing with higher doses associated with
better clinical and harm reduction outcomes. Good practice
is for methadone prescribing to be delivered alongside
various psychosocial or counselling interventions, an
approach which has also been associated with better
outcomes. Prescribing guidance recommends an optimal dose
range of 60-120 mg of methadone per day. Risks (including
those of overdose) increase when methadone is reduced or
stopped. National Clinical Guidance on prescribing for drug
misusers makes it clear that methadone prescribing should
only follow adequate assessment of extent of drug problems
and dependence. Initial methadone dispensing should involve
supervision of consumption with progress to "take home"
dependent on successful stabilisation (Drug Misuse &
Dependence. Guidelines on Clinical Management
HMSO 1999).
Seventy-eight people were receiving medical treatment
for a drug problem in the six months prior to death, of
which 66 were prescribed methadone by their general
practitioner or specialist service doctor. No records of
other specific medical treatments for drug misuse were
recorded - though in three cases it was noted that one had
received "detoxification"; one "assessment" and one
"tolerance testing".
Identification of dependence
All case records available for those who had ever had
access to any services (n=305) were searched for
documented, objective evidence of the person having a
recognised dependence syndrome. Only eight case records
(2.6%) had this information recorded.
Methadone dose
Sixty six people were prescribed methadone during the
six months prior to death. Only 40 were prescribed
methadone by their time of death. For one person,
information on dose or duration of prescription was
unavailable in any case record.
For the remaining 39, dose range was from 4 to 100 mg
(mean 53.9;
SD 24.1). Sixteen people (34%) were
prescribed 60 mg or more while 24 (66%) were prescribed
less than 60 mg. When dose at death is compared with their
previous recorded dose it can be seen that 21 people (54%)
were having their methadone dose increased and 8 (20%) were
being reduced. In 11 (28%) cases there is inadequate
information in casefiles to determine prescribing plans or
trends.
People had been on methadone treatment for varying
periods. No information was available on duration of
treatment in 9 cases. Duration of prescription ranged from
2 days to over 7 years (mean 19.6 months;
SD 26.93). Four had been in treatment
for up to 1 month, 10 between one and 6 months and four
between 6 months and one year. A further four had been
treated for up to 2 years, three up to 5 years and four
more than 5 years.
Prescribing information was available in casefiles for
14 of the 26 no longer receiving prescribed methadone. No
records were available for the remaining 12 people. When
available, records show that prescriptions ended between
two days and eight months before death occurred. Table A4.2
in
Appendix 4 displays these
data in more detail.
Dispensing arrangements
Of the 40 who were receiving prescribed methadone at the
time of their death 27 (68%) collected their methadone
daily, either six or seven days per week. One person
collected their prescription three days per week, five
collected once a week and one person did so every two
weeks. Arrangements for the remaining six cases were not
recorded in casefiles.
Information on method of consumption was available for
32 of the 40 people receiving prescribed methadone at their
time of death. This is displayed in table 5.10. Six
collected their methadone from a treatment centre of whom
five consumed their methadone under supervision. Of the 26
people who collected their methadone from a community
pharmacy, 21 (81%) consumed their methadone under
supervision on the pharmacy premises and five (19%)
consumed at home.
Table 5.10: Method of collection and
consumption of methadone
Method of
collection/consumption | Number of cases
(Frequency) | Mean dose (mgs) | Range (mgs) |
|---|
Collection from treatment centre -
Supervised consumption | 5 | 43 | 10-80 |
|---|
Collection from treatment centre -
Consumption at home | 1 | 60 | 60 |
|---|
Collection from pharmacy - Supervised
consumption on premises | 21 | 58 | 20-100 |
|---|
Collection from pharmacy - Consumption at
home. | 5 | 44 | 4-80 |
|---|
Of the five people who collected from the pharmacy and
consumed at home, two were homeless and another two were on
anti-depressant medications - implying they had complex
problems. Notes recorded no evidence of injecting for any
of these people in the last six months but no other
indicators of stability were noted. All were unemployed and
none had attended any specialist drug treatment
services.
Case study A 35 year old man who was started on a
methadone prescription for 50 mg daily on
Tuesday. He died on Friday of a heroin,
methadone and benzodiazepine overdose. No record of assessment, prescribing
decisions, dispensing arrangements nor access
to counselling or support was available in any
casefile. |
Non-specialist Detoxification
Clinical case notes recorded 26 people attempting to
abstain or detoxify from drugs in the six months prior to
death. Nine (34%) were recorded simply as
self-detoxification. A further 10 (38%) were aided by a
prescription from their
GP, and seven cases (27%) sought
abstinence by other means. Outcome data were recorded for
23 of these cases. Seven (27%) successfully completed
detoxification and appeared to remain drug free until
death. 11 (42%) completed detoxification but relapsed, and
the remaining five (19%) did not complete their
detoxification. Few details are recorded.
Did not Attend (
DNA) rates
Very little was recorded in service case notes and/or
other information systems regarding 'Did Not Attend' rates.
This cannot therefore be commented on.
Waiting times
Of the 237 cases in contact with services in the six
months prior to death, 19 (8%) were identified to be on any
waiting list. Only two of these were on a waiting list for
a drug treatment or intervention service.
Interpretation
Of the 317 people who experienced a drug-related death
in Scotland in 2003, only 66 were prescribed methadone
during the six months prior to death. Of these, 26 (39%)
were no longer prescribed methadone by the time of death.
There was little information regarding the assessment
carried out prior to initiation of a prescription with only
8 people having any records showing assessment of
dependence prior to prescribing. Records for those
prescribed were also limited with inadequate information
available in 28% of casefiles to determine whether
prescriptions were increasing or decreasing. Of those
prescribed methadone at the time of death, 66% were on
sub-optimal doses of less than 60 mg though 54% were
increasing their doses. Records of dispensing arrangements
show that those 5 people who were taking their methadone
home may not have been stable with two described as
homeless and two on antidepressants. Only 11% of people on
methadone received any recorded counselling interventions
during that period. Only one person prescribed methadone at
the time of death was also in receipt of counselling.
The quality of recording in casefiles was often poor
making judgements of the quality of care received
impossible in many cases. In those where information was
available, it is clear that there were inconsistencies in
the delivery of methadone prescribing for this group, some
of which fell outside the standards set in the available
clinical guidance.
Contact with Criminal Justice System
Limited data were made available from the Scottish
Criminal Records Office (
SCRO). Two-hundred and seventy four
(86%) of those suffering a drug-related death in Scotland
in 2003 were ever known to
SCRO. Almost all (83%) of those known to
SCRO were aged 20-40yrs. Detailed arrest
data were not accessed during the investigation study
period.
Contact with community- based specialist
criminal justice schemes
Information on contact with community-based specialist
criminal justice schemes showed very little contact for
this population (Table 5.11). The available data may be an
underestimate as some contacts may be unrecorded. It should
also be noted that many of these initiatives were in their
infancy in 2003 or were unavailable in some areas of the
country.
Table 5.11: Contact with community based
specialist criminal justice schemes
Type of service | YES
Ever | YES
<6months | NO | UNKNOWN |
|---|
ARS | 0 | 0 | 31 (10%) | 274 (90%) |
|---|
DFP | 6 (2%) | 0 | 17 (6%) | 282 (92%) |
|---|
CBATCS | 23 (8%) | 8 (2%) | 12 (4%) | 270 (88%) |
|---|
DTTO | - | 7 (2%) | 41 (13%) | 257 (85%) |
|---|
Drug Court | - | 5 (2%) | 34 (11%) | 266 (87%) |
|---|
EPO | - | 7 (2%) | 38 (13%) | 270 (85%) |
|---|
ARS - Arrest Referral Scheme
DFP - Diversion from Prosecution Scheme
CBATCS - Community-based Alternative to
Custody Scheme
DTTO- Drug Treatment and Testing Order
EPO - Enhanced Probation Order
Outstanding charges at time of death were recorded in 21
cases (8.9%).
Contact with Scottish Prison Service
Of the 317 cases, 149 (47%) had previously had a prison
sentence. Of these, 70 (47%) died within 6 months of
release, including thirty-six deaths (24%) which occurred
within one month of release, 10 (28%) of which were within
three days of release. No drug-related death occurred
within any Scottish prison in 2003.
These figures represent a reduction in the number of
drug-related deaths when compared to the previous year
(n=383). In 2002 176 (46%) of all drug-related deaths had
previously had a prison sentence. Fifty four deaths (31%)
had occurred within one month of release of which 18 (33%)
were within three days.
Deaths following Friday release
Table 5.12 sets out the number of deaths that occurred
after release from prison. Six of the ten people who died
within 3 days of leaving prison were released on a Friday.
Two of these were from Barlinnie and one each from
Edinburgh, Greenock, Inverness and Kilmarnock.
It may be that Friday releases are at increased risk of
drug-related death. However, it should be noted that, of
all prisoners released by the Scottish Prison Service in
2003 (n=22,915), 32% were released on a Friday as all
releases due on Saturday, Sunday or Holiday Monday occur on
the preceding Friday.
Table 5.12: Number of people who died following
release from prison
Prison | Number of deaths |
|---|
Ever been in prison | | Within 6 months | | Within 1 month | | Within 3 days | |
|---|
Aberdeen | 11 | | 4 | | 3 | | 0 | |
|---|
Barlinnie | 49 | 24 | 11 | 2 |
|---|
Castle Huntly | 1 | 0 | 0 | 0 |
|---|
Corntonvale | 13 | 5 | 3 | 1 |
|---|
Dumfries | 3 | 0 | 0 | 0 |
|---|
Edinburgh | 16 | 5 | 1 | 1 |
|---|
Glenochil | 1 | 0 | 0 | 0 |
|---|
Greenock | 10 | 8 | 5 | 2 |
|---|
Inverness | 5 | 2 | 1 | 1 |
|---|
Kilmarnock | 7 | 5 | 3 | 1 |
|---|
Low Moss | 20 | 12 | 5 | 1 |
|---|
Noranside | 0 | 0 | 0 | 0 |
|---|
Perth | 5 | 2 | 2 | 1 |
|---|
Peterhead | 0 | 0 | 0 | 0 |
|---|
Polmont | 7 | 2 | 2 | 0 |
|---|
Shotts | 1 | 1 | 0 | 0 |
|---|
Total | 149 | 70 | 36 | 10 |
|---|
Deaths within six months of release
Of those who died within six months of release (n=70) 50
were dependent/long term users, one was a recreational user
and 19 could not be determined.
Thirty-four (49%) had been convicted and one imprisoned
for non-payment of fines. 15 (21%) were on remand. Sentence
information was unavailable in the
CSC file for 20 (29%) of these cases as
they had not self-disclosed an addiction issue while in
prison or this information had not been reported in the
records identified. Of the six females who had been
imprisoned, one had been convicted and the other five held
on remand.
Deaths within three days of release from
prison
Table 5.13 details factors relating to those who died
within three days of release.
Table 5.13: Deaths within three days of release
from prison
| Age (yrs) | Release prison | Home area | Time served (weeks) | Release - death
(days) | Prison prescribed | Prescribed on release | Toxicology* |
|---|
Case 1 | 41 | Kilmarnock | Lanarkshire | 60 | 3 | Diazepam
Dihydrocodeine | No | Heroin
Diazepam |
|---|
Case 2 | 23 | Perth | Forth Valley | 3 | 1 | No | No | Heroin |
|---|
Case 3 | 24 | Edinburgh | Lothian | 5 | 3 | No | No | Heroin Alcohol |
|---|
Case 4 | 26 | Low Moss | Glasgow | 10 | 1 | No | No | Heroin Diazepam |
|---|
Case 5 | 26 | Barlinnie | Lanarkshire | 2 | 3 | No | No | Heroin Diazepam |
|---|
Case 6 | 38 | Inverness | Grampian | 4 | 3 | No | No | Heroin |
|---|
Case 7 | 28 | Cornton Vale | Glasgow | 3 | 2 | No | Yes | Methadone Diazepam |
|---|
Case 8 | 30 | Greenock | Argyll & Clyde | 26 | Same day | No | No | Heroin Alcohol |
|---|
Case 9 | 31 | Barlinnie | Glasgow | 6 | 3 | Diazepam | No | Methadone Diazepam |
|---|
Case 10 | 37 | Greenock | Argyll & Clyde | 56 | 2 | No | No | Heroin Diazepam |
|---|
*Toxicology: Only positive results for Heroin, Diazepam,
Methadone and Alcohol are displayed here. Other drugs may
have been present but not displayed in this table.
Prison record by age group
The Bar chart (Figure 5.14) below illustrates the
relationship between age and prison record. It can be seen
that around half of those aged between 20 and 40 years had
been in prison at some point in their lives compared to the
over-40 age group where only one person had ever been in
prison.
Figure 5.14: Relationship between age and
prison record

Transitional care arrangements
In June 2000 the Scottish Prison Service launched a
revised drug strategy which included plans aimed at
effectively managing the transition between prison and the
community. "Transitional Care" was introduced by
SPS in 2001 to support prisoners who
were serving less than four years or were on remand and who
had an identified substance misuse problem. Prisoners
serving more than four years do not have access to
"Transitional Care" as they are catered for by the
SPS Sentence Management System and
statutory post-release arrangements. Some establishments
offer Transitional Care to all drug misusers who are
brought to their attention. In others, demand has led to
waiting lists. Self-referral is also available in every
Scottish prison, even for those not accessing casework
services.
Scottish Prison Service records show that Transitional
Care was offered to 34 (49%) of the 70 inmates who died of
a drug-related death in 2003. Access to Transitional care
was unavailable for 14 people (20%). Eight were on a
waiting list (
HMP Barlinnie only) and one was in
HMP Shotts where the scheme is
unavailable. Five people in
HMP Kilmarnock could only access
Transitional Care by self referral. None did. Ten were not
known to Cranstoun (4 in Barlinnie, 4 in Low Moss, 1 in
Edinburgh, 1 in Inverness). Notes were not available in 3
cases (2 in Barlinnie, 1 in Cornton Vale).
Of the 34 offered Transitional Care in Scottish Prisons,
23 (68%) accepted while 11 did not. Distribution by
establishment is shown in the table below (Table 5.15). In
the case of those who were not offered formal Transitional
Care, or were ineligible for it, it cannot be determined
from existing data what attempts were made to ensure the
continuity of care and treatment between community and
prison, nor can it be determined whether the time in prison
was used constructively to initiate treatment by referral
to outside agencies.
Table 5.15: Offer of Transitional care
(n=70)
| Care Offered | Accepted |
|---|
Yes | No | Yes | No |
|---|
Aberdeen (4 deaths) | 1 (25%) | 3 | 0 | 1 |
|---|
Barlinnie (24 deaths) | 8 (33%) | 2 | 7 (87%) | 1 |
|---|
Cornton Vale (5 deaths) | 3 (60%) | 1 | 1 (33%) | 2 |
|---|
Edinburgh (5 deaths) | 3 (60%) | 1 | 1 (33%) | 2 |
|---|
Greenock (8 deaths) | 6 (75%) | 2 | 4 (67%) | 2 |
|---|
Inverness (1 death) | 1 (100%) | 0 | 0 | 1 |
|---|
Kilmarnock (5 deaths) | 0 | 5 | - | - |
|---|
Low Moss (12 deaths) | 8 (67%) | 0 | 7 (87%) | 0 |
|---|
Perth (2 deaths) | 2 (100%) | 0 | 2 (100%) | 0 |
|---|
Polmont (2 deaths) | 2 (100%) | 0 | 1 (50%) | 1 |
|---|
Shotts (1 death) | Transitional Care not available |
|---|
Scotland (70 deaths) | 34 (49%) offered | 23 (68%) accepted |
|---|
Interpretation
Transitional Care should give an opportunity to offer
support and enhanced access to treatments known to impact
on drug deaths, to this vulnerable group. Fifty of the 70
deaths which occurred within 6 months of release, were
known to be long term dependent users yet only 34 were
offered access to Transitional Care. This may reflect the
organisation of the Transitional Care services, including
their inclusion and exclusion criteria. In some
establishments there were clearly practical barriers to
access - with one having no access to Transitional Care at
all, one accepting only self-referrals (of which none of
the
DRD group availed themselves) and one
having waiting lists. Some of the 70 may have received
interim liberation or may have been released from court, in
which circumstances they would not be in a position to be
offered or to accept Transitional Care. There are varying
degrees of success from establishment to establishment,
regarding conversion of the offer to an accepted
intervention. Some prisons converted 100% of offers while
in others as little as one in three accepted the offer.
Improving identification of this group, increasing the
number offered such support and increasing the numbers
accepting the offer gives potential for impacting on
drug-related deaths after release from prison.
Case study A 30-year-old male who died on the day of
liberation from prison. Post mortem states he
died of heroin intoxication. He had a history
of moderate mental health problems dating back
some 10 years - diagnosed as suffering from
depression and anxiety which had been treated
by his
GP with antidepressants. He
was also known to be opiate dependent having
been an IV user for three years. The prison
mental health team had assessed him regarding
suicide risk and organised a
GP appointment on his
liberation day but he failed to attend. He was
socially isolated, having lost contact with his
family and was homeless, having given up his
tenancy on entering prison in July 2003. He was
liberated to a friend's home, claiming to be
drug free. He was found dead in the bathroom
having injected heroin. |
Conclusions
This chapter highlights the fact that the majority of
those dying of drug-related causes in Scotland in 2003 were
known to at least one service with some known to many. They
were mainly accessing generic service providers and the
services they accessed tended to reflect local service
distribution. In all areas this contact was mainly with
their General Practitioner or Primary Care team. Other
generic services were regularly accessed in emergency
situations including Accident & Emergency and Acute
Psychiatry services. Repeated contacts were common but
there was little evidence of a coordinated response or
follow up. There are clearly opportunities to intervene in
this group which have not been fully exploited - including
education of generic services and improved coordination of
response to those repeatedly presenting to services. This
work should involve Psychiatry and Accident & Emergency
services.
Those in contact with specialist services were mainly
accessing medical treatment (such as methadone replacement
prescribing) or Social Work interventions. Only 17% of
those known to services were in receipt of replacement
prescribing services at the time of death. Most methadone
prescribing was through General Practice. Records of
assessment and decisions regarding prescription alteration
- dose increase or reduction; dispensing arrangements
etc. - are poor. Most were prescribed low
doses of methadone and few also received supportive
counselling. There is a need to improve the demonstrable
quality of prescribing treatments and to improve access to
supportive counselling interventions which may impact on
risk for this group.
Key Points
- There is a need to improve the quality of note
keeping, in both community-based services and those
within the Scottish Prison Service, to allow closer
scrutiny of the care received.
- Most people suffering drug-related deaths were
known to services and many were accessing more than
one.
- These services are often generic (
i.e. not specialists in the field of
substance misuse) and were often accessed in an ad hoc,
chaotic manner. Most were discharged with inadequate
follow up in place or failed to attend any such follow
up appointments resulting in discharge and no further
action.
- There is a need to increase awareness of this
problem and to deliver training and improved
coordination for those generic staff most likely to
come into contact with this group - General
Practitioners, Psychiatric services, Accident &
Emergency and Social Work.
- Specific medical interventions for drug misuse were
only accessed by a minority of these people. When
accessed they were often prescribed methadone.
- Methadone replacement prescribing should be
delivered alongside supportive psychosocial
interventions, including counselling - which was only
accessed by a small minority of the prescribed
group.
- Methadone should be prescribed in line with the
current evidence base - following a full assessment of
drug problems and dependency; in adequate doses to meet
need; dispensed safely and effectively under
supervision until the person is demonstrably
stable.
- Many had been in prison in the last 6 months. Ten
died within 3 days of release of which 6 were released
on a Friday. There is a need to ensure that effective
communication takes place to ensure imprisonment does
not interrupt treatment (if being accessed before
incarceration) or that it gives an opportunity to
increase access to treatment if not already in contact
with services.
DAATS should review the care
pathways across the community/prison interface and
ensure adequate accessibility to services for all newly
released prisoners.
- Transitional Care is not being made available to
all who require it. Prisons show varying success
regarding take-up rates.
- There is a need to ensure all opportunities are
taken to intervene when drug misusers are in prison.
Prisons should look proactively at how they engage with
prisoners at the start of their treatment cycle.
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