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CHAPTER SIX: "TOTALLY GO FOR IT" -
INDIVIDUALS', FAMILIES' & EMPLOYERS'
PERSPECTIVES
INTRODUCTION
6.1 This chapter presents the findings from qualitative
in-depth interviews with 15 individuals with learning
disability and/or
ASD who were in 'supported employment',
their families and employers. The key aim of carrying out
interviews with supported employees and families was to
collect information that would inform, inspire, encourage
and ultimately would lead to more and better 'supported
employment'. This was a gift for the research team as
opportunities to search out positive and inspiring
information are rare.
PARTICIPATIVE RESEARCH APPROACH
6.2 The purpose of including interviews with supported
employees in the study was primarily to bring out
authoritative real life information about what life is like
for people who are in 'supported employment'. Supported
employees' accounts provide honest, straightforward and
often very moving evidence about the quality and impact of
services, both good and bad. Their information is powerful
and instructive. It is also essential if we are to gain a
full and true picture of the services being examined.
Participative approaches help to ensure the people who know
about services through their own personal experiences
genuinely inform research.
6.3 As detailed in Chapter One, we recruited 3 people
with learning disabilities as Research Associates who had
experience of research and/or employment issues, and
together with the Researchers, they carried out interviews
with supported employees, families and employers. For
interviewees, the experience of being interviewed by
someone who has similar life experiences can be far less
disempowering than being interviewed by other researchers,
however good their practice. The most persuasive argument
for us, though, is that a participative research approach
is the right way to work. Research about people with
specific life experiences should as far as possible be
driven, carried out and even better owned by people who are
also part of that community.
THE SAMPLE
6.4 The sample of 15 supported employees came from 5
different services. Four of these were selected from the 69
survey respondents as examples of best practice in
'supported employment'. Another was chosen because it
currently supported people with autism in employment. The
services supported individuals in urban and rural areas and
demonstrated evidence of most of the following aspects of
best practice: supporting jobs for more than 16 hours a
week; finding jobs in integrated work settings; ensuring
people were better off financially; adopting a person
centred planning and consumer-driven approach; using
'natural supports' in the workplace; and adopting a career
development approach. One of the services,
Intowork, was working solely with people with
ASD, while the other 3 were working with
people with disabilities including learning disabilities.
In the paragraphs below, we describe these services briefly
and use information from the interviews to illustrate how
they supported individuals in employment.
Open Project, Paisley
A voluntary sector project, which has existed for over 5
years, run by ENABLE Scotland. It offers support to around
30 people with learning disabilities to "access employment
opportunities and sustain employment in an open
environment". Six staff support people in paid jobs, work
placements and jobs in social firms. Most jobs are 16 hours
or more. The Open Project emphasises the importance of
individual choice and spending time at the beginning of the
process to discover individual preferences and offering
choice as they feel this "leads to greater sustainability".
They have also supported at least one person in
self-employment.
Both employees and their family members commented on how
helpful the job coach had been in helping to maximise their
income through supporting claims for benefits and tax
credits. One employee, who was about to be made redundant,
was pleased at the continuing support he had received from
the job coach and was confident that she would help him
find another job.
North Lanarkshire Council Supported Employment
Service
A dedicated 'supported employment' service run by the
local authority that started in January 1999. It works to
ensure adults with learning disabilities and mental health
problems who want to work receive appropriate support and
opportunities to "access real jobs for real wages". A large
staff team of 29 supports around 70 individuals in paid
jobs, most of whom are people with learning disabilities.
The service has achieved an average paid working week of 25
hours for the vast majority and all those in 'supported
employment' are financially better off.
North Lanarkshire's job coaches consistently supported
the employees they worked with to develop their skills
within the jobs they were doing: for example, one person
was supported to learn a number of tasks at his workplace
to be in a better position to apply for any jobs coming up
in that workplace; another was supported to undertake SVQ
training offered by the employer. One employee received
significant additional support to enable him to stay in his
job until he could find one more congenial to him. It was
recognised that it would be harder for this man to find
other work if he was no longer in employment. Support was
also given to employees to extend their horizons: one
person was being encouraged to obtain a passport and to
take driving lessons.
Intowork, Edinburgh
A voluntary sector project that is over 3 years old is
part of a broader service for people with disabilities, and
works with people with ASD or Acquired Brain Injury. The
service provides person centred, flexible support to enable
individuals to achieve their employment potential. Their
stated mission is "to create equality of opportunity to
enhance the lives of our service users and support them to
progress towards employment, social and economic
inclusion." Eleven staff support a range of employment
opportunities for about 80 people. The majority of people
with ASD who are supported in work are in paid jobs, and
most of these work more than 16 hours per week.
The job coach had helped one employee change jobs within
the organisation he worked for after it was recognised that
his unhappiness with his initial job was affecting both his
performance and attendance at work.
One employee, as part of his apprenticeship, had to
spend a few months in a number of different parts of his
company. The job coach had been meticulous in finding out
in detail about the work tasks and environment of each of
these placements to make the employee's transition from one
placement to the next as seamless as possible.
Family members talked about the job coach being
sensitive to family issues and concerns, whilst maintaining
a clear focus on the needs of the employee.
Shirlie Project, Inverness
A voluntary sector project providing one-to-one
employment support to people with disabilities and looked
after children for the past 7 years. The project aims to
provide open paid employment at the going rate for those
who need support in gaining or maintaining jobs; to enable
individuals to achieve their potential; and to enable them
to gain independence and respect. The project's 18 staff
support nearly 200 individuals, 25% are people with
learning disabilities and/or ASD. While not all of these
individuals are being supported in full-time work, most are
in jobs of 16 hours or more.
The project provided sustained support to one person who
had a difficult relationship with some of his work
colleagues to enable him to stay in his post. Employees
were encouraged to think about their career development,
whether that is about learning new skills in an existing
job or looking for another job to meet their ambitions.
Job coaches also encouraged employees to develop other
interests and used this as a natural way to keep in touch
with people who needed less intensive workplace support:
e.g. one employee was going to meet up with his job coach
for a game of golf.
6.5 Among those interviewed were 11 men and 4 women.
While this does reflect the predominance of men in paid
employment found by the survey as reported in Chapter Five,
this was a higher ratio of men than expected. The
composition of the sample was purposive and as such, we
worked closely with the selected agencies to achieve a mix
of sample characteristics. Although we would have liked to
include more women in the sample, this did not prove
possible alongside meeting the requirement to include
people with learning disabilities and/or
ASD, people from urban and rural areas,
those working 16 hours or more and so on.
6.6 Individuals aged 17 to 47 years were included in the
sample. The following table summarises the age distribution
of the supported employees interviewed and can be seen to
reflect the survey finding that the majority of people with
learning disabilities and/or
ASD in paid jobs were between 25-49
years.
Table 6.1: Age range of
supported employees interviewed
Age in years | Number of supported employees in
sample |
|---|
16-20 | 3 |
|---|
21-25 | 5 |
|---|
26-30 | 2 |
|---|
31-40 | 1 |
|---|
41-50 | 4 |
|---|
TOTAL | 15 |
|---|
6.7 It is noteworthy that nearly all interviewees (11
out of 15 individuals) were living with parents or family,
which could be perceived as the restrictive impact of
welfare benefits on the employment of people with learning
disabilities living in supported or residential
accommodation. One person lived alone. Another was living
in supported accommodation, another in a care home and
another with her/his partner.
6.8 In terms of their employment history, the supported
employees interviewed tended to be in their first
'supported employment' job (12 out of 15). Three were in
their second 'supported employment' job; one with the same
employer and 2 with different employers but supported by
the same 'supported employment' provider. Eight out of the
15 were in their first paid job. Six had had previous jobs,
which they had obtained without the help of 'supported
employment' agencies, one of the 6 had obtained 3 different
jobs previously.
6.9 Interviewees had been in their current 'supported
employment' or self-employment for varying lengths of time.
Table 6.2 below describes the length of time they had been
in their current paid jobs and shows that those interviewed
included a mix of people newly in jobs as well as those in
well established posts.
Table 6.2 Length of time
interviewees had been in their current job
Length of time | Number of interviewees |
|---|
Within past 6 months | 2 |
|---|
7-12 months | 2 |
|---|
Over a year and under 2 years | 3 |
|---|
Over 2 years and under 3 years | 4 |
|---|
Over 3 years and under 4 years | 1 |
|---|
Over 4 years | 3 |
|---|
INDIVIDUAL NARRATIVES
6.10 The stories all 15 people and their families told
us were inspiring in many different ways, irrespective of
whether they were totally 'good news'. Collectively, people
told us about the many benefits from employment for them as
individuals, their families and their communities. Some
people told us about significant struggles along the way
but all confirmed that employment was life enhancing for
them and their families. In the stories told below we have
not used people's real names to preserve their
anonymity.
Edith
Edith works as an events organiser in a nursing
home. She plays dominoes and bingo with the residents
and makes them cups of tea. Sometimes she goes out with
residents. She works 4 afternoons a week for a total of
16 hours per week. She's been in her job for 8 months.
This is her first paid job. She is in her 40s and lives
with some other people in accommodation with support.
Edith really likes her job because she gets to meet new
people and because she gets paid! If she didn't have
her job, she would really miss meeting people: the
residents, the staff and the visitors: "without this,
I'd be left out - no family, no friends." Edith's pay
helps her to manage her bills better (
e.g. her phone bill). She can also go on
holiday, which she's never been able to do before:
she's going to Spain. She's also doing more line
dancing and buying more clothes. She said that the best
thing about the job is "I'm happy. Happiness".
Robert
Robert is on his second job with the same employer.
He didn't like his first job very much: "I did it for 2
years. It was a bit boring. I was on my own all the
time - down on the ground floor. I wanted a new job."
With his job coach's help, he negotiated a different
job. His current job is as a member of the Finance
Department. It's a small team of 4 people; they all
have different jobs and they have their own office.
Robert's key tasks are: typing invoices, photocopying,
counting money, stamping invoices, Visa card
transactions and sending out invoices. He works for 9
hours per week spread over 3 mornings. His benefits
situation limits his working hours (he lives in a care
home). Although he works for only 9 hours per week,
Robert highly values the money he earns because it
makes a big difference to his disposable income. He
feels happier working. Robert, who is in his mid 30s,
was clear about the advice he would give other people
thinking about working: "Go for it"
Angela
Angela, who is in her 40s, has been working for 6
years as a clerical assistant in a Social Work
Department. She answers the intercom and the
telephones. She uses the computer a lot and does
photocopying and the mail. She works from 10.00 to 3.00
five days a week. She likes to talk to everybody and
work along with them. She gets on well with people. She
likes to have a laugh and if she didn't have her job
she would miss the people and the money. Angela said
that the best thing about having a job has been " To
help myself. To do things - doing my own things. I'm
now doing the things that I can do myself. I can't go
on the bus myself but I can do the taxi." She knows the
job very well and is still learning new tasks. She
feels more confident in herself. She has made friends
and has a good social life. Her mum said, " Angela was
needing work badly but no-one would give her a job. She
went after job after job. She was getting very
frustrated...It has made her a different person."
Angela lives at home with her mum.
Debbie
Debbie has been working fulltime as a carer in a
nursing home for 4 months. She really likes working
with older people: she likes sitting down and talking
with people, helping them to feel better. She helps
residents with personal care tasks and with eating.
She's had quite a lot of training for her job: for
example, she's learnt to use a hoist so that she can
help people have a bath. She's also going to be doing
an
SVQ. She's now a key worker for one
person and she can work on her own. The main things
Debbie's not too keen on are having to get up early and
working weekends, both of which affect her social life.
Debbie, who is 19 and lives at home with her parents,
says that working has made her happier. She had got
very depressed after leaving college 2 years earlier
and her mum was worried about her. She's pleased she's
got her own money and is planning a weekend away in
York and a holiday. She's keen to help her mum get
their house done up and for her mum to have a holiday
too. Debbie's ideal job would be to work with special
needs children. She thinks she'll stay in her current
job for a couple of years and use her
SVQ to open up new doors, maybe
becoming a home help with the Council. She's planning
to take driving lessons soon and then get a car; having
a car will open up more options for her. Debbie thinks
that a good employer would be like her boss, who's very
approachable, good to talk to. She's provided really
good training and offered Debbie the opportunity to do
the
SVQ. She always does what she says
she will do. Other staff at the nursing home are good
too. " They'll say, 'Don't stand by, come and ask'.
When you tell them, they'll come straight away or send
someone else if they're busy."
Steven
Steven has worked for almost 4 years as a Domestic
Assistant in a nursing home. He works 4 days a week on
a shift basis and gets about one weekend a month off.
He had previously worked in the garage where his dad
had worked: his dad had got him that job. He thinks
it's a good job. His job involves hoovering, mopping
and emptying the bins on a daily basis: he has to put
the bins out twice a week and do a more extensive clean
weekly. He likes working with people and working with
older people like his granny. He's happy with the
wages. The matron has said that he does his job very
well. The only thing he's unhappy with is the bins,
because they smell. He said that the best things about
having a job are " It's just good. The residents are
good. The staff are good. The boss is good." Steven,
who is 27, is definitely more confident as a result of
working. He's also better off financially: he
contributes to the family's housekeeping costs and is
able to afford to go on holiday (he's been to Sweden
and Madeira with his parents this year). He's made new
friends through work, although most people working at
the home are older than him: he doesn't see them much
socially, although there is a retirement party coming
up. He's also learnt new skills, like hoovering! He
wants to continue working in the nursing home - and has
plans to get beds there for his parents so that they'll
give him their house, although he'd have to buy out his
sisters! His ideal job would be the boss at the nursing
home.
Jenny
Jenny has been a self-employed garden
specialist/horticulturalist for just over 2 years. What
is now her business began as an engrossing hobby. She
works from a plot of land on her parents' farm. She
grows plants for people to order and bedding plants,
herbs and perennials for sale from home and at the
outlet provided by a local shop. She's more recently
started to do a weeding and planting service. She's
learnt that she has to pace herself and to avoid burn
out only does one weeding and planting session of 2
hours in any day. Jenny, who is 23, works seven days
per week, totalling about 40 hours in the week. She has
Direct Payments: her team of 3 personal assistants help
her with her work, as does her mum. However, Jenny is
clear that she has the knowledge and that she is the
manager of the team, but they do all work as a team.
There are many reasons why Jenny is happy in her job.
She likes seeing the final results, everything
flowering and looking good. She likes that people come
to her for advice. She likes helping people (she has
given a week's work experience to someone with special
needs, when no one else would give her a chance). She
likes doing the actual work, a lot of which she can do
easily, with music playing in the background. She is
proud that she can stick at a task sometimes better
than other people as she gets obsessed with it. She
also takes pride in improving what she does each year,
by taking notes of what works and what doesn't. She's
pleased with the money she's earning as the business is
growing each year and her plan is to come off tax
credits etc altogether. Jenny thinks that what makes a
good job is "being happy with your work. It has to
something you enjoy doing. It has to be something that
challenges you and stretches you but not so challenging
you give up." She gave the example of answering the
phone, which she wouldn't do previously, but now she's
beginning to. There have been 3 key aspects of support
for Jenny: her family; her personal assistants funded
by Direct Payments, who have been critical to what she
has achieved; and the Princes Trust, who took her on
"with all her baggage", helped her start up and have
continued to follow up with her to see that she can
keep going. The Princes Trust was so impressed by her
achievements that she won their New Business of the
Year award for 2003. The best thing about having a job
for Jenny is the potential for being independent and
not having to rely on her family all the time,
especially financially. She also likes the fact that
she has learnt new skills and her job keeps her
occupied. She gets out more as a result of her job: for
example going to nurseries or Flower Shows. Having her
PA's to drive her places has helped
a lot; a medical condition means she is not allowed to
drive herself. She has got to know more people through
her work. Earning money has enabled her to buy her own
clothes and to make contributions to the household.
Jenny's dream job would be the head of a big garden
chain with lots of money and she'd be swimming in the
Caribbean! She is planning to have a house of her own
and she and her family have already identified the site
on part of their land. In the shorter term, her plans
include thinking about getting a van or hatchback.
Jenny's path to her current position hasn't been easy.
She has clear ideas about help that other people might
need. She believes employers need to be aware of
people's individual differences and to accommodate
these. She sees it as an issue about attitude and
awareness. Some employers would need a course in how to
deal with employees with difficulties. As she said when
talking about the woman she offered work experience to,
"I know what it feels like. If no one will give people
like me a chance, I will."
Craig
Craig is 21 years old and lives with his parents.
Craig began an electronic engineering apprenticeship
about 9 months ago after getting an
HND at college: it will last 4
years. This is his dream job. He had previously had a
job with Safeways. He had got this himself before he
learnt that he had Aspergers. He moves round to
different departments and goes to college for a month
every 3 months for training. As an apprentice he also
gets help from a more experienced colleague in each
department he goes into. He likes having someone to
talk to, to ask questions about the things he needs to
find out. He likes the flexi-hours and the people he
works with. The wages are quite good and will go up in
stages through his apprenticeship so he'll be on full
wages at the end of the 4 years. He also has been able
to buy a car through the company scheme. For Craig, a
good job is where he can see things through from
beginning to end and to know he's done a good job. It's
important that people are patient with him and show him
as he's learning and not get annoyed with him. The job
has made a big difference to his life. He's more
confident. He goes out with the other apprentices. He's
got more money and is able to give his mum some
housekeeping money. He's also learnt more skills. Craig
plans to stay in his dream job. He'd been interested in
electronics since he was quite young. The training he's
getting as an apprentice is so good and he understands
that he's likely to get a job automatically at the end
of the apprenticeship. He also finds it a nice
environment to work in. His mum added that she thinks
Craig is more able to mix with people and that he is
learning that because his workplace is such a safe
environment for him.
Andy
Andy is 25 years old and lives with his parents and
brother. Andy is on his third job working in the retail
sector. The first job he had he got himself. He works
on the checkout at Sainsbury's. He sometimes works at
the kiosk or the petrol station. He works 3 shifts a
week. He thinks it's not a bad job and that he'll
probably stay there for a while, although his ideal job
would be working for Rangers
FC. The people he works with are
pretty good: they have some days out together to places
like Blackpool, and nights out at a club occasionally
and at Christmas. He thinks Sainsburys are a good
company to work for because of the way they treat him:
" Their attitude; the way they treat you. When I
started I made a lot of mistakes; they weren't angry".
The personnel manager got someone to go over things
again with him. The longer he has been there the better
he has got at the job. He has his 6 monthly discussion
of how he's doing, like all the staff. The store
trainer helps staff learn how to use things like new
tills. Andy thinks he couldn't have any better help.
Andy has developed his skills with customers, chatting
to them and keeping eye contact. The company gave him a
voucher after a customer wrote in saying what a good
service they had had from him. He's had a lot of praise
for his work. According to his mum, one of the places
where Andy worked before "didn't care: he wasn't fast
enough for them".
Jeff
Jeff lives with his family and works full time in
the biggest garage in his area as their main tyre
fitter. He works with 35-40 other people who are mainly
qualified mechanics. The job is great for Jeff because
he really likes cars and driving. His ideal job would
be a rally driver. He's keen to learn to do other
things at the garage: he's going to start doing some
welding and would like to drive the recovery truck, but
he'll have to wait till he's 21(he's 20 now) to do that
as those are the rules. The best thing about working
for Jeff is that he can keep his car on the road. He
feels good that he's working. His younger brothers
think it's wonderful he has a job and his sisters are
proud of him. He can take his sisters where they want
to go: he's important in the family. The worst thing
about having a job for Jeff and a lot of other
employees who were interviewed was "getting up in the
morning particularly Mondays". Jeff feels more
confident now he's working. He used to rely on his mum
but now he knows what working is about. He's better at
handling unhappy customers. He talks to people outside
work and he goes out on a Friday night.
Derek
Derek is 17 years. He is in his first job and works
for a firm that makes double glazed windows. He's only
been working there for 7 weeks. He works fulltime.
Derek wanted to be a joiner and went on a college
course to learn manual trades. He came on work
experience to the firm where he now works. He liked the
work and the firm liked him. He's glad he got the job
because he didn't want to sit about. Derek currently
works on the first stage of making a window. He puts
the steel in the plastic frame of the window, which
involves choosing the right steel for the type of
plastic being used and making judgements about the
amount of space to be left between the plastic and the
steel. He is part of a team, working with 3 other
people. After they've completed their job the window is
passed on to the next team. He will get the chance to
learn other parts of the process. Then, if any better
jobs come up at the firm, he'll be able to apply. The
wages are
OK and he's saving to go on holiday
to Skegness. His mum said that she thought he was more
confident now and that he has made some new friends
through his work.
John
John is in his 40's and has had his own flat for
many years now. He worked for 10 years at a wood
factory, then for 2 years as a kitchen porter. He left
that job because of ill health and his
GP advised him to work only part
time. He now works as a storeman at a factory that
makes computers. He's going to be made redundant as the
factory is closing in August. He's been talking to his
job coach who is hoping to line something else up for
him. He's confident that his job coach will find
something for him. When he started, John's job was to
make up batteries for computers. Now when he's not very
busy, he wraps up orders so he's not sitting around and
it takes the pressure off the lads he works with. He
gets on well with most people he works with: it's nice
to be told he's doing
OK. "The other boys and Tina (the
staff trainer) help me out if there's a rushed job or
if I have a problem, but mostly I'm left to get on with
it, which helps I think. One of the boys helps sort out
things like if the numbers in the order are wrong". The
only thing he's not happy about is the wages, but he's
now applied for tax credits. For John, the best thing
about having a job is that you get to meet people,
learn how to interact and work as a team. You get job
satisfaction and it's something else you've learnt to
do. John thought that a good employer was someone who's
helpful, will hear what you have to say and will act on
it - "Folks shouldn't judge you. I've been to
interviews and felt uneasy with the attitudes of
people. You have to get the tag off us. Employers
should have extra help or training about how to deal
with people with disabilities. They should have
organisations to contact if things go wrong. AND equal
pay, regardless of whether you're disabled."
Patrick
Patrick, a young man in his early 20s lives with
his parents and works at a garage as a tyre fitter. The
other people who work in the garage also fit tyres, but
do brakes, batteries and exhausts as well, because they
have more qualifications than Patrick. Patrick finishes
earlier than the other people at his work: this suits
him. He gets on particularly well with one other
colleague who helps him out and explains things. The
wages he gets are the best bit of the job for Patrick,
but he does think it's important to have a laugh at
work. The money has meant that Patrick can afford to
buy
CDs, go on holiday and he's bought a
scooter to get to work. Patrick said it was a good
feeling going out to work doing something, "not lying
in bed wishing I had a job. I can tell my mates that I
work at the garage. I've learnt a lot but I'd like to
learn a lot more. It's a good feeling going out to
work, not lying in bed." He's also proud that he's
taught other people to fit tyres. He likes talking to
customers and appreciates it when he gets thanked for
what he does for them. Patrick's ideal job would be a
pilot or maybe a Tae Kwondo instructor. He feels he can
do better than his current job. Patrick would like to
learn to drive a car but thinks he'd need some help
with the theory bit. He values the support he gets from
Bill, his job coach. He has a lot of respect for Bill
and trusts him. Bill has helped him deal with some
difficult times at work. This is the second job Bill
has supported him with.
Gary
Gary is in his 40s and works as a cleaner at a
further education college a few miles from his home.
This is his first job. He works each weekday afternoon,
adding up to a total of 16 hours per week. Gary has had
some difficulties with some of his work colleagues and
some students, so he now gets support for all his hours
of work from Annie (who works for the Supported
Employment Service). He explained, "I don't need help
with the job - but with the other people at work." The
job is better for Gary now with Annie's support but
he's hoping to get a job in a bakery in his hometown.
Gary likes having a job, but doesn't want to keep
working in the college. Since he got his job, Gary is
more independent. He travels to places on his own. He
talks to his mum about what he does at work now that he
has a job. He helps out more at home too. Gary has more
money, which has enabled him to save for a
holiday.
Richard
Richard who is in his early 20s lives at home with
his family. He works at a call centre for a national
utilities company. He types misdirected payment forms
into the computer. He is good at this and the job suits
him. He's the only person doing this job; the work was
previously divided between all his colleagues. Everyone
is pleased that Richard is now doing this job. He works
3 days a week from 2pm to 8pm; this is fine for him.
Richard had had some difficulties in the past but had
sorted them out and didn't want to talk about them. He
tells people if there are any problems. Richard said
that a good job means "having something real to do and
having people to work with who you get on with".
Richard sometimes goes to the pub with people from work
after a shift to watch football. Richard thought that
being a good employer means "being aware as they can be
about me and the way I am and being trained properly in
supporting me in my job and they should try to help him
sort out any issues". Richard was pleased that his job
coach spent time getting to know him and helped him
work out what work he would be able to do.
MAIN THEMES FROM INTERVIEWS WITH SUPPORTED
EMPLOYEES
Jobs and workplaces
6.11 Employees were working in a wide variety of jobs
and workplaces. For example, 4 people worked for large
companies: one was a national utility company; another was
a major electronics/engineering company. Another 3 people
worked for public sector organisations: a local authority,
a further education college and a prestigious national
public body. Three worked in large nursing homes. Two ran
their own small businesses as community gardener and a
horticulturalist/specialist gardener. The 13 people who
were in employed jobs were working as care assistant,
apprentice electronic engineer, supermarket checkout
operator, a factory operative, as a storeman, call centre
operator, clerical assistant, finance assistant, events
organiser, tyre fitter (2 people), domestic assistant and
as a cleaner.
6.12 It was notable that the range of jobs undertaken by
the 15 interviewees was more variable than the traditional
manual jobs available to people with learning disabilities
in the past. For instance one person was employed as an
events organiser in a nursing home, 2 were tyre fitters and
some jobs required significant levels of technical skills (
e.g. the apprentice electronic engineer). Some
employees had achieved academic qualifications, which had
assisted them when applying for jobs (
e.g. National Diploma in retailing).
6.13 While the above list typifies entry level jobs,
most employees in these jobs had only recently left
school/college or, although in their 40s, had not
previously been in paid jobs. Some employees were also
clear about their plans to progress into more skilled work
and some were about to or had already embarked on the
necessary training. For others, it was evident that their
jobs brought self-esteem and many other valued benefits,
which we explore further, later on.
6.14 The majority of interviewees were employed
full-time. All but 2 were employed for 16 hours or more
each week. Six people were employed for 35 plus hours per
week. The jobs people had were all typical of jobs in these
industries and only one person worked on his own. Nine
supported employees did the same job as other people at
their workplace. Three had specific jobs as members of
teams where there were a number of different jobs. Three
people had a specific role which other colleagues undertook
part of the time in addition to their other
responsibilities. Everyone doing the same job as other
people was being paid at the same rate as their colleagues,
except for one person who was uncertain what the situation
was. The majority (9 employees) worked the same hours as at
least some of their colleagues, 4 did not. The 2 who were
self employed are not counted in these figures.
Employment support
Natural supports
6.15 Eleven people said they were happy with the support
they received from people at work to do their job. For
example one person said, "When you ask them, they'll come
straight away or send someone else if they are busy ".
Another said, "I couldn't have any better help. My
colleagues or the supervisor will help." A third said
"There's always someone about that I can get help from if I
need it." One further person was happy with the support
they received from one colleague, but not from the others
they worked with. Another said they were happy with the
support they got from their work supervisor, but not from
other colleagues. The 2 self employed people were not asked
this question.
Help from Supported Employment Agencies
6.16 All employees, with the exception of one person who
was self employed and had not received support for this
from a Supported Employment agency, were asked broad
questions about their satisfaction with the help they had
received from the employment support agency. Questions
focused on help they had had to decide on the right kind of
job, to find the job and about on the job support. The
questions were open and interviewees varied in the kind and
amount of detail they gave in their responses.
6.17 The majority stated that they were now able to do
the job itself without support. There were examples of
people getting assistance from colleagues, for instance if
they were falling behind or the task required 2 people (
e.g. using a hoist at the nursing home). An
employee working on the checkout said that staff would help
with packing trolleys if there was a large load. These were
examples of customer service or of colleagues working
together in ordinary ways. One employee has a team of
people to help her; they help her with the workload and
provide the support she requires to enable her to do the
work with her disabilities.
6.18 For many people, contact with job coaches or other
'supported employment' staff was now infrequent, taking
place at long intervals and mainly for 'check up/ review'.
Contact was sometimes social. It was clear though that the
continued back up of the 'supported employment' agency was
regarded as an essential part of the 'package' even for
people who had been in their jobs for 4 years or more. It
was evident that employees knew they could contact the
agency and/or individual job coach if something was going
wrong or, for example, if they wanted to change jobs.
6.19 With the one exception, job coaches had helped
people work out what kind of job they wanted and had helped
most people to find and apply for their jobs. They had
helped with learning the job and in some cases helping to
learn new tasks later in the employee's career: for
example, the job coach of the apprentice electronic
engineer learns each new set of tasks as he moves to a new
department. A number of job coaches had also been very
helpful to employees in maximising their income by
supporting them to apply for the full range of benefits
they were entitled to and for working tax credits. The role
of job coaches in helping employees plan for the future is
also referred to later on.
6.20 Employees and families spoke warmly of the help and
support that employment agencies and individual job coaches
had provided. There were many illustrations of very
positive relationships, good and dependable communication
routes, valued resourcefulness and also that "nothing was
too much trouble". Even when contact was less frequent
agencies provided a reliable and accessible backup bringing
the reassurance that there was always "someone on your
side".
Changes in current jobs
6.21 Ten employees identified changes in their current
jobs. Some changes did not apparently impact on people's
experience of the job in any significant way such as a
change in manager. However for one employee, a new company
manager had recently been appointed and had introduced a
number of changes that had had a negative impact on his job
and work conditions. He found this unsatisfactory; however
his job coach was supporting him to address some of the
difficulties with the new manager and some colleagues
provided natural supports.
6.22 Eight people described the following beneficial
changes in their current job:
- Introduction of constant on the job support while a
new a job was being found - as conditions were
unsatisfactory in the current job
- Training leading to skills development, new tasks
and responsibilities (2 people)
- Introduction of improved systems or equipment
- Move to new and better premises plus change of
hours to incorporate a break to bring conditions in
line with those of other colleagues
- Business growth and development - for the 2 people
who were self employed
- Addition of new responsibility/tasks
6.23 Another employee was working fewer hours, although
this was still over 16 hours, and seemed happy with this
though she hadn't initiated the change. Four employees had
however experienced significant difficulties at work. One
felt that his/her difficulties had been resolved and that
it had increased his/her confidence that this had been the
case. Another had been unhappy with elements of his/her job
and had negotiated, in conjunction with his/her job coach,
a different job with characteristics more suited to him/her
with the same employer. For the other 2 people, both of
whom had significant issues with people they worked with,
the difficulties had not been resolved, but they were
determined to stick with the job until they could secure a
better job. It was striking that all still had positive
things to say about being in work, despite the
difficulties.
Impact/outcomes of paid employment
6.24 All of the people in 'supported employment' we
spoke to (and all of their families) told us about how
their lives had been changed by getting a job. Everyone
talked about how their confidence had increased and how
this had a knock on effects in other areas of their lives.
People were very happy to have a job, but were clear that
this had had an impact on their whole life. For example,
one young man was more dissatisfied with living in a care
home as a result of being a valued and respected employee
and was thinking through with his parents where he might
live in future. Some family members specifically commented
on how having a job had a profound impact on their
son/daughter's health and well-being.
6.25 Interviewees often mentioned how having a job had
enhanced employees' independence. A variety of examples
were given: travelling alone, going out more socially,
going on holiday, and taking responsibility for
finances.
6.26 All supported employees were in paid jobs and were
better off financially to varying degrees and this enabled
them to enjoy a better and more varied lifestyle. People
used their additional income to go on holiday, to pay for
driving lessons, to buy a car or a scooter, to contribute
to their families' household costs or to buy more things,
like
CDs or clothes. Several spoke about the
support they had had from their job coaches to maximise
their income by applying for specific benefits and/or tax
credits. One person who lived in a care home was
circumscribed in the hours he could work because of his
benefit situation
6.27 Another aspect of having a job that both employees
and their family members mentioned was that it enhanced
their self worth and how they were perceived by others.
Employees felt proud that they could say they had a job,
which their friends and acquaintances would recognise as a
valued role within their community. One young man told us
that it felt good that he could say where he worked, rather
than to have to say he was unemployed or attended a day
centre for disabled people.
6.28 Many of the employees we interviewed were very
happy with most aspects of their current job. One common
factor in this happiness appeared to be that they felt
confident in their ability to do their jobs. Many employees
stated that they needed little or no help to do their job
now. This confidence seemed to stem in part from careful
collaboration between them, their families, their job coach
and their employer to ensure that the jobs, the conditions
of work and the support from job coaches and/or fellow
employees were tailored to their interests, skills and
needs.
6.29 Thirteen of the 15 people interviewed talked about
positive relationships with their work colleagues: indeed
for some people this was a key positive aspect of being at
work (
e.g. "having a laugh"). Several talked about
how their work colleagues would help them out if they were
busy. The 2 other people talked about less than helpful
working relationships, which seemed to reflect an unhealthy
workplace rather than simple discrimination against a
disabled colleague. When employees talked about their
workplace, we gained the impression that employers who
fostered positive working relations between all their staff
and provided good working conditions for all staff were
good employers of disabled people.
6.30 It was noticeable that whilst many employees talked
about their positive relationships with work colleagues,
very few had developed into significant friendships outside
work. One person talked about going out socially on a
regular basis with someone they used to work with and going
to a nightclub occasionally with current colleagues.
Another talked about watching football with his work mates
at the end of a shift. Several more talked about going out
with work colleagues at Christmas or on leaving nights out.
Three people noted that they would like to do more things
socially with their colleagues.
Jobs or careers?
6.31 Most people said that their job coaches had
discussed future options with them. It should be noted that
2 people were in their first few months of employment and
that three other people were coming late into their first
job. Many of the employees envisaged staying in their
current job for some time. For a couple of people this may
have reflected the fact that they had only been in their
jobs for a few weeks/months. Two people who had been in
their jobs for 3 years were keen to do tasks that others in
their workplace undertook to develop their skills.
6.32 Some said that they thought they were in their
ideal job. Others mentioned their ideal job with relish:
the 2 tyre fitters had dreams of being a rally driver or a
pilot. Many of the employees found it difficult to envisage
their 'ideal' or 'dream' job that was different to the one
they were doing, some because they explicitly said their
current job was their dream job. Four people identified
their ideal job as, variously, a rally driver, a pilot or a
Tae Kwon-do instructor, working for Rangers
FC and heading up a big Garden Centre
chain.
6.33 Some were taking the lead in enhancing their jobs:
for example, one of the tyre fitters had secured his boss'
agreement that some of his colleagues show him how to weld.
Others were using opportunities offered by their employers
to open up future work avenues: for example the carer in
the nursing home was pleased to be offered the opportunity
to do an
SVQ. Some people also talked about
developing skills that would give them greater future work
opportunities: learning to drive was mentioned in this
context. For at least one person, it seemed that the boost
to self-confidence as a result of being in a job had made
them reassess what jobs they might be able to do in the
future.
How to make it happen for other people with
learning disabilities and/or
ASD
6.34 Supported employees' ideas about how more people
with learning disabilities and/or
ASD could work included having more
agencies like the ones that had supported them into
employment. Some suggested that employers needed to be more
understanding of people with disabilities. To help this
process, it was suggested that employers might need
training or other forms of extra help.
FAMILIES' PERSPECTIVES
Independence
6.35 All family members talked about their relative
having become more confident and independent as a result of
having a job. This confidence/independence was expressed in
various ways and impacted on several aspects of their
lives. One mother had had concerns about her son's ability
to travel independently to his work and was very pleased
that her concerns had not been justified. Another mother
talked about her son not being so anxious when his dad went
away to work. Several talked about their family member
being more confident in talking to people away from their
workplace. A couple of mothers noted that their sons had
become more willing to undertake household tasks.
Changes in the family
6.36 A number of family members indicated that their
relative's role in the family had been strengthened since
they began work. One mother talked about her son's younger
brothers thinking it was wonderful their brother had a job
and that his sisters were quite proud of him. Her son had
an enhanced role in the family since he got a car: he could
take his sisters where they wanted to go. Another
employee's mother spoke about how her son could now express
himself better, which had contributed to a better
relationship with his sisters. There is a sense from some
interviews that having a job meant that the employee's life
felt more like their siblings, which was pleasing for both
the employee and their siblings.
Worries and concerns lessened
6.37 Almost every family member talked about their
relative getting a job easing their worries about them.
Four people said they had had periods of depression and
talked about feeling significantly better as a result of
their relative being employed. A number of family members
noted that they had had concerns about how having a job
would work out for their relative. All of them were
relieved that their concerns had now receded.
Advice to other families - "Go for
it!"
6.38 When asked what they would say to another family
whose relative might be taking up a job, family members'
responses were universally positive. "Go for it" was a
phrase uttered many times in answer to the question. A
number of parents emphasised how important it was that
parents should support their sons and daughters to try
employment and to maintain that support through inevitable
delays and setbacks. People were encouraged to think
positively.
How to make it happen for other people with
learning disabilities and/or
ASD
6.39 Family members were asked about how more people
could be in 'supported employment'. Like their relatives,
many said that there needed to be more 'supported
employment' agencies and often coupled this with fulsome
praise for their relative's job coach and/or 'supported
employment' agency. There was some suggestion that the
existing schemes needed to be better advertised. It was
also suggested that the government needed to advertise both
what help is available to get jobs but also to make
employers aware of the skills and talents of people with
disabilities. One person suggested that the advertising
could be as powerful as the drink/driving and smoking
advertising campaigns. Another person suggested that it was
important to raise awareness of 'supported employment'
services during school years. A number of relatives also
stressed the need for education for and understanding from
employers.
KEY MESSAGES FROM SUPPORTED EMPLOYEES AND
FAMILIES
6.40 The key messages noted below are drawn from 2
sources: respondents' answers to specific questions about
advice to people in similar position, what more needed to
be done to enable more people with disabilities to work and
what makes a good employer; and analysis by the interview
teams to identify themes from individual respondents'
strongly held views and assertions.
KEY MESSAGES
For people with disabilities
- You can get your dream job
- Just ask - you can get difficulties at work sorted
out
- You can run your own business: there are people and
organisations who will help
- Jobs need to be stretching but not so challenging
you give up
- Having a job is an awful lot better than sitting
around all day
- Keep trying for the right job
- Don't think if you'll get a job, think when you'll
get a job
- You get to meet and be with people
- You gain confidence, more independence, more
skills, more money and self esteem
- If things are going wrong in a job, hang on in
there and get support to find a better job
- Positive relationships with colleagues really help;
you can have a laugh too
- Job coaches and some jobs open up new
opportunities- things you might never have thought of
before
- Having a job can allow you to contribute to your
household's income - and in other ways to your family's
life
For families
- Family support, encouragement and backing really
helps
- Supported employment can benefit the whole family -
financially, worry/anxiety levels, relationships,
individuality and independence
- Good job coaches will take you and your needs into
account as well
- Your hopes could be surpassed, your concerns might
not materialise
For employers
- If you run a good business - good pay and
conditions, a good atmosphere in the workplace and good
working relationships - it will be a good place for
'supported employment'
- You need to be aware of people's individual
differences and requirements
- People with learning disabilities and/or ASD can do
a wide range of jobs and contribute to your workplace
if the support is right
- Your other staff can help
- You've got to watch out that other staff treat the
person in 'supported employment' reasonably
- Supported employment can be good for your business
-customers will tell you so
- Advertise that you provide 'supported
employment'
- Make sure you and your staff have the training you
need to get the support right
- Difficulties can be sorted out - work it out
together, the answer can come from a wide range of
sources
For government and other agencies
- Promote equality - by promoting the value of
'supported employment'
- Ensure that 'supported employment' agencies can
work with people with high support needs
- Good 'supported employment' agencies have an impact
not just on people's employment but on their whole
lives
- Government should look into the situation of people
trapped by the benefits system, e.g. those in supported
accommodation/care homes
- Promote direct payments as one of the supports for
employment
- Education, awareness raising and training are all
vital - in schools, colleges, for employers and for the
public
- Ensure that gateways to employment, like college
courses are better tailored to individuals and that
support is not only available in segregated courses and
facilities
- Ensure 'supported employment' is the norm
EMPLOYERS' PERSPECTIVES
6.41 Interviews were conducted with 10 employers with
the permission of the people with learning disability
and/or
ASD. Two people were self-employed, 2
did not give permission to speak to their employer and it
was not possible to arrange an interview with the other
employer in the timescale for the research. The intention
was not primarily to discuss individual performance but to
use the experience of employing the individual to reflect
on issues that arise for employers when considering such an
employee. Their comments are not meant to be representative
in any way of all employers' views but exploratory and
offer a snapshot in given circumstances.
6.42 Despite the small size of the sample, the places of
employment were fairly wide-ranging. They covered factory
work, an engineering production line, caring, data
inputting and administration, property maintenance and
garage work. All posts but 3 were in the private sector and
of the 3 in the public sector, one was with a private
company subcontracted to do the work. Half of the companies
had had previous experience of employing someone with a
learning disability and/or
ASD.
6.43 In the interviews we attempted to explore how
employers came to employ the particular individual and
whether any related concerns or expectations were realised;
whether there has been any impact on the company of
employing this person; and some general points about
lessons to be learned by both employers and government from
the experience.
Employers' experiences
6.44 A number of factors and often in combinations
influenced making the decision to employ someone with a
learning disability and/or
ASD. A vacancy had arisen and the
company had been "keen to set a good example". Taken
separately more than half employers referred to the company
being predisposed in some way, for example:
"As a company we've got a disability friendly
attitude to disability. We've always done this. It
helps us achieve a diverse workforce."
6.45 Just under half said they were having difficulty
filling a particular post. This seemed to be both a matter
of good timing on the part of the 'supported employment'
service and of particular skills shortages in the labour
market. There was a vacancy and the 'supported employment'
service had made contact with the employer either in
relation to an advert or as a cold call. Also there was a
skill shortage mentioned by more than one person from the
West of the country.
6.46 Related to the above point was what is referred to
at various times as the 'business case' for employing
someone with disabilities. In other words, employers had
realised that people with disabilities made reliable,
motivated and consistent workers:
"The problem we have is plenty of vacancies…The Job
Centre doesn't send us 'good workers'- they send us
criminals, drug addicts and folk who don't want to
work…The people we get from the Supported Employment
Scheme are very different - they work hard, they turn
up and they're never off sick. Their folks have lots of
talents."
6.47 About a third of the interviewees referred to the
professional approach of the 'supported employment' project
both in discussing what their employees might have to offer
as employees and in convincing them as employers about the
support available on a regular and trouble-shooting basis.
A third of employers also referred to a personal contact or
sympathy that predisposed them to listen to the project's
'pitch' and proceed:
"Well, the job coach is a personal friend. We were
chatting one day about someone she couldn't get placed.
She explained- it was just casual, off the cuff, about
Aspergers and his need for structure. Well that suits
the work l do…I thought maybe we could give this chap
some work experience so that he could get the feel. I'd
no intention whatsoever of giving him
employment…."
6.48 Looking at the group of employers who had no
previous experience of 'supported employment', the
pre-eminent factors were an existing vacancy, which had
been difficult to fill; personal sympathy and company
aspirations; and the professional approach of the project.
The 3 people with Aspergers Syndrome were employed in 2
situations where there was a clear personal contact factor
and one where there was previous experience of employing
someone from the project.
Employers' expectations
6.49 When asked what expectations they'd had before
employing someone with disabilities, the employers for whom
it was a first experience, all said they had no idea what
to expect but were anxious about staff reactions and
whether the individual would cope. However, in retrospect,
they suggested this was "fear of the unknown" and that it
had not been borne out in practice. A third of the
employers, both new and old hand, had rather low
expectations or thought wrongly that "I would only get 30%
of the job from him" or that the individual "would only
last a couple of weeks", or the balance between charity and
business return would be more in favour of charity.
6.50 Two employers mentioned that previous experience
helped because they knew that although adjustments would
need to be made and caution exercised, it was possible for
it to work well. As for any worries in taking people on,
half the respondents were concerned unnecessarily about how
the other employees would cope:
"I did worry whether the other staff and clients
would take to her. There are no visible signs of X's
disability and you know how vocal old people can be. If
they don't like you, you know about it. Also she was an
outsider, she wasn't even from Wtown, quite apart from
her disability. What has made it work? - well it's been
down to her personality and the support she has had and
we have had."
6.51 About a third of employers wondered whether the
individual would cope and whether what was being asked was
reasonable. One employer had worries about health and
safety, which involved detailed risk assessments. Half
commented on the importance of the job coach and confidence
in the 'supported employment' scheme in dealing with such
anxieties:
"(Worries)… absolutely not, due to our relationship
with the Supported Employment Scheme, they profile
people very well and l know that the folk they send us
will have a chance of doing the job available".
Reality of 'supported employment'
6.52 In reality, the anxieties of the employers were not
realised. Indeed employers talked about "surprising us and
himself" and of one individual it was said that he/she was
"charismatic" and "took to the job very easily". A third of
the employers talked about the will and wish to work as
carrying people through:
"Well people with disabilities generally speaking
have a better attitude, excellent attendance, want to
work and will work. They have what we old fashionedly
call a work ethic".
6.53 Half the employers interviewed referred to
tailoring the job as the individual began to settle in.
This involved adjusting hours for reasons of physical
capacity and health, providing some extra support through a
carer rather than the job coach, adjusting an
administrative job to the components requiring less
initiative or in one case, identifying an entirely new job.
These comments suggest that flexibility and willingness to
review posts and/or their component parts are vital
ingredients of success. Other comments included a little
extra effort at the outset, good relationship between the
job coach and the employer and good information from the
job coach.
6.54 Words such as "amazing" and "fantastic" were used
to describe how well more than half the employees were
doing in their jobs and a much smaller additional number
were said to be "doing fine". About a third were said to be
managing well subsequent to some adjustments, minor
setbacks and in one instance a complete job change. In this
latter instance what had seemed positive features to do
with limited social interaction, proved too unsupportive.
Employers seemed to tackle these by discussion and using
the job coach:
" She's 90% of the way there. We've had a bit of
stumbling; a few setbacks- mostly informal guidance has
worked. On one occasion we did bring back the job coach
because she was upset and brought it into work- and it
was interfering…We spoke to them (accommodation
providers) and it's now resolved…"
Impact on supported employees
6.55 "Amazing" changes in supported employees were
described as the outcome of managing the job well. Improved
confidence, greater social interaction, communication and
'joining in' were the types of gain observed by employers,
together with better organisation skills and being better
off from being in a job. One person had rarely volunteered
before but now asked questions, "initiates conversations"
and was generally "more self assured". For another
individual there had been a "big difference" for
instance:
"Greater self-esteem, won't take his work jacket
off - he's so proud to be a worker. The jacket, the
job, the pay mean a lot to X and he's better organised
and more systematic in what he does".
6.56 Of particular interest were the comments from a
third of the employers in respect of vocational inclusion.
Individuals had now blended into the workforce and were
"almost invisible". People had become "part of the gang"
and in one workplace other employees had stopped swearing
only to start again when the supported employee started
swearing and cursing. The employer commented - "that's what
I call inclusion."
Impact on the company
6.57 Without exception employers said the impact on the
company had been one of raising their profile as being
"more forward thinking" and "more caring". Additionally
half referred to the "added value" aspect, improved
efficiency and a real asset - someone whom staff and
clients liked. The following remark contains the
ingredients typical of the comments made:
"In the last five years we've become more aware of
putting something back into the community and
supporting people, more aware, more forward thinking.
Also we have been able to capitalise on his skills,
rather than passing him by. Maybe smaller companies
might struggle to provide mentors (on site employee,
not the job coach) It reflects well on us but we're
certainly not a charity and we couldn't have kept him
on if he hadn't been a valuable employee"
6.58 One manager commented that the supportive and
generous reaction of some of his "tough" employees had "
reinvented our faith in humanity!" Most employers said
their companies had learned a "huge amount" both in
relation to people with disabilities and/or
ASD and as good employees; and in
relation to their ability to support people successfully in
the job even though it had been "a steep learning curve".
The presence of employees with disabilities had in some
cases enabled workplaces to "become a nicer place to
be".
6.59 Those who were first time employers of people with
disabilities commented on the learning about 'supported
employment' and on how having access to "a system that
works" had made a difference:
"Well I've learned l don't have to use the
jobcentre anymore…I've got the confidence to take on
people with disabilities or disadvantage. I recently
took on a young person from X. I don't think l would
have done that before. I'm now prepared to look at
different options"
6.60 Interestingly 2 people commented that thinking how
to meet the needs of the person with disabilities had
helped them think about everyone else's needs more clearly.
Just like the companies, it was said that the employees
themselves had learned from their workmates with
disabilities. The learning was mostly around tolerance,
putting something back, being generous, more accepting,
"getting a buzz out of making it work", and in specific
instances, learning about Aspergers Syndrome. One manager
said he was "proud of my guys, especially the younger ones"
in the way they had supported the individual, and another
commented that the individual with disabilities had
"brought out a dormant caring attitude" which had resulted
in "more camaraderie".
6.61 There were only 2 responses that while basically
positive, were more muted in tone. These employers
indicated that some employees had been responsive and
others less so, but "most are used to X as part of the
team". One manager went on to comment that if the situation
were the same after a month or so, he would intervene.
6.62 Most of the employers we spoke to were operating in
the context of an equal opportunities policy, which had
varying degrees of prominence. Alongside this some
mentioned employee representative committees, training,
unions, flexible working and staff development programmes
and whistle blowing policies. There was one exception where
there was no stated policy. Here the owner viewed "my own
personality" as the safeguard, adding that he didn't
tolerate anyone being treated badly whoever they were.
6.63 The question of flexible working arrangements was
notable because a third of the respondents commented on
changes made in people's working conditions to accommodate
health issues or physical capacity. In only one instance
had the solution to this been less than straightforward.
The company in question had introduced new productivity and
efficiency targets some time after the individual had been
employed most successfully. This impinged on his ability to
work the full day. So the company sought additional funding
from the local authority to buy in additional hours. The
employment service saw this as retrograde. The employer saw
it as a way of keeping the individual in post. A more
light-hearted story involved company dress code (wearing a
tie), which the individual with Aspergers Syndrome found
irksome. He was given dispensation- and eventually so was
everyone else!
Lessons learned by employers
6.64 When asked what lessons were to be learned from the
experience, more than two thirds referred to the efficacy
of support provided by the 'supported employment' scheme in
terms of matching/profiling people to the vacancies
available, the on-going support of the job coach if
necessary and support/information provided by the scheme to
the other employees where needed. One employer
commented:
"Supported employment schemes are great, very
positive, you get great support from their system. They
(the person with disabilities) take someone with them
on the journey. You can help people tackle the hurdles
rather than just leaving the job".
6.65 The above point was closely followed by the
importance of not making assumptions about what people can
or can't do, and not to fear disability. A number of people
made the point that people with learning disabilities and/
or
ASD should be supported, not treated
differently. In conclusion, it was clear that the
experience of these employers had been that the barriers
could and did come down; not only that but, in the words of
one employer, "everyone wins".
KEY MESSAGES FROM EMPLOYERS
6.66 The following key messages were identified from the
employers' responses to specific questions about advice to
other employers and what more needs to be done to enable
more people with learning disabilities and/or
ASD to work.
Advice to other employers
- Experience has shown that people with learning
disabilities are reliable and hard working
employees
- Employers need to hear more about success stories
from other employers
- People with learning disabilities have a lot to
offer businesses and need to be given a chance
- Good 'supported employment' has a lot to offer
employers - job profiling, job coaching and on-going
support for the disabled employee are also of benefit
to employers
- Flexibility of working arrangements is helpful not
only with employees with disabilities but other
employees too
Advice to government and other
agencies
- Government could do more to change attitudes and to
sell 'supported employment' to businesses as many
employers are unaware of the benefits
- Those promoting 'supported employment' need to
adopt a business-like approach, and put the business
case for employing disabled people
- In promoting employment, government and other
agencies should recognise that employers don't respond
to charity but need to see the benefits to their
company
- Government should provide more information about
different disabilities to raise awareness, for example,
about Aspergers Syndrome
- Government should set targets about the numbers of
disabled people that should be employed within
companies
- Develop more 'supported employment' schemes and
make sure 'supported employment' becomes more widely
available
- Government should make more use of senior managers
in business who can act as 'champions' to speak out at
conferences and to professional bodies
CHAPTER SIX: SUMMARY OF KEY FINDINGS
- The 15 individuals with learning disabilities
and/or ASD interviewed and their families expressed a
high level of satisfaction with 'supported
employment'
- Some individuals had clear career ambitions while
others were newly in work, or were developing in their
jobs, or were happy and in their 'ideal job'
- Outcomes of 'supported employment' included
increased self-esteem and confidence, social inclusion,
greater disposable income and better lives
- All were in paid jobs and were better off
financially, some considerably so, and this had enabled
them to enjoy a better and more varied lifestyle
- One person who lived in a care home was
circumscribed in the hours he could work because of his
benefit situation
- Whilst most employees felt that they got on well
with work colleagues, very few spent significant
amounts of time with them outside of work.
- Benefits for families included reduction of stress
and worry, improved family relationships and relief
that "desperate situations" had been turned around
- There was widespread praise from employees and
their families for the support they received from their
job coach and/or the 'supported employment' agency
- Several spoke about the support they had had from
their job coaches to maximise their income by applying
for specific benefits and/or tax credits
- Support to stay in jobs where there were
difficulties was critical, at least until such time as
a change of job could be arranged
- From employers' perspectives, deciding to employ
someone with a learning disability and/or ASD was
influenced by the predisposition of the company;
difficulties filling posts; labour shortages; the
'business case'; and importantly, the professionalism
of the 'supported employment' service
- Employers' anxieties about staff reaction and
individual's ability to cope were largely unfounded, as
was an expectation that the 'charity return' would
outweigh the 'business return'. Other employees were
more tolerant, accepting and supportive than
expected
- The impact of 'supported employment' on the company
had been to raise its 'forward thinking' profile and
increase confidence to make further appointments
- Employers identified flexibility and willingness to
review posts as the main ingredients of success
- Employers stated the impact on supported employees
was "amazing" - increased self confidence,
communication, as well as "blending in" with the
workforce
- The experience had taught employers about the
efficacy of 'supported employment'; to not make
assumptions about what people with disabilities can or
can't do; and about the need for flexible working
practices
- Individuals and families agreed that 'good'
employers provided support for their employees with
disabilities, using the same careful individualised
approach they took with other staff
- Employers felt government should be more proactive
in selling 'supported employment' to companies;
identify champions: and exploit success stories
- The key message from employers was encapsulated by
the following comment: "We've learned that people with
learning disabilities can work, want to work, they're
good and cheerful colleagues".
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