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"Go for it!": SUPPORTING PEOPLE WITH LEARNING DISABILITIES AND/OR AUTISTIC SPECTRUM DISORDER IN EMPLOYMENT

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CHAPTER THREE: BROADER STAKEHOLDER PERSPECTIVES

INTRODUCTION

3.1 It was clear from the short-life working group's report on employment, 'Working for a change?' (2003), that achieving employment for this disadvantaged group is not just about closing day centres or changing expectations. In its discussion, the working group acknowledged the interplay of systemic issues, negative attitudes, limited knowledge and information, the lack of mainstreaming and leadership, all of which serve to compound the difficulties faced by individuals and their families and the innovative services which exist.

3.2 In this chapter, we discuss these issues from the perspectives of 10 key stakeholders chosen in collaboration with the Research Advisory Group. Five were central government departments, although one was at arm's length, and 5 were umbrella organisations within the statutory or voluntary sectors. They included representatives of Careers Scotland, Scottish Enterprise, the Association of Directors of Social Work, the Health Service, ENABLE, the Disability Rights Commission, the Scottish Union of Supported Employment, Jobcentre Plus, The National Autistic Society and the Department of Transport, Enterprise and Lifelong Learning.

IMPACT OF 'THE SAME AS YOU?'

3.3 A common view across all key stakeholders was that in relation to people with learning disabilities and/or ASD, employment was not yet sufficiently high on the policy agenda, despite the current climate being especially conducive to change. This was borne out by the limited engagement with the employment agenda as identified in The same as you? Only 2 interviewees identified this document as having had a significant impact on their organisations, and both were social work related organisations. The impact had been to give a higher profile and priority to modernising day services and to developing 'supported employment' options. However, as one commented, while "employment has taken off in some areas, it's not yet on the corporate agenda"

3.4 A central government agency stated it had facilitated the creation of more effective links with wider structures in order to expand the 'employability' agenda. Half had no or little awareness of The same as you? with a minority stating that the Beattie report had had greater influence on their organisation. These were mostly, but not exclusively, broader employment agencies. This could be viewed as disappointing given these organisations are best placed to take forward the mainstreaming of 'supported employment'.

SYSTEMS EFFECTIVE IN PROMOTING EMPLOYMENT

3.5 The most commonly cited method for effectively promoting employment was the 'supported employment' model. A general view was that the technical know-how, such as vocational profiling, job matching, Training in Systematic Instruction ( TSI) and job coaching etc. existed and its success demonstrated. However, it was also argued that 'supported employment' was not available to most people with learning disabilities and/or ASD:

"The best that is held up…has only 100 people in jobs - that's peanuts. Compare that to the numbers in day centres. It's self evident that we're failing."

3.6 The importance of dedicated and "well-defined services" focusing purely on employment, and which included in-built sustainability through a support package for both employers and employees, was emphasised. Further, "intensive work on benefits" and providing support to find and stay in work had demonstrated that 'supported employment' works when implemented properly.

3.7 Alongside this, one voluntary agency noted that the spread of person-centred planning approaches generally had strengthened the 'supported employment' agenda. Interestingly this individual focus was echoed in the comments of the central government agencies, all of which identified the extension of their remit to people dependent on a range of benefits and the creation of personal advisers and key workers within their systems, to support this endeavour.

3.8 Two interviewees referred to the mainstreaming of funding as being helpful, although added that this needed to be based on an understanding of the principles of 'supported employment'. Strikingly, there was only one mention of the Disability Discrimination Act as an aid to promoting employment. This was in relation to people with ASD for whom 'reasonable adjustments' beyond physical arrangements to include aspects of advertising and interviewing together with harassment, was deemed relevant.

3.9 In respect of employment practices being helpful, there were 2 distinctive views expressed. One was that 'equal ops' was "all well and good" as a backdrop but in day-to-day matters it was a "red herring". The other view expressed was that a good 'supported employment' service would overcome any misunderstandings and resistance by working closely with employers. Also the point was made that opportunities were missed by failure to make the 'business case' for employing people with disabilities.

PERCEIVED BARRIERS TO EMPLOYMENT

3.10 A predominant theme to emerge unprompted from voluntary and local statutory organisations, was a perceived lack of leadership and absence of a consistent framework from which to commission quality 'supported employment' services and against which to audit performance. As a result, there was felt to be unhelpful "variability" in the field and "no rhyme nor reason often as to what projects survive and which ones don't". Consequently, while some "good services" had not survived, some "bad services" continued to operate.

3.11 Asking specifically about the barriers identified by the short-life working group (Scottish Executive, 2003), interviewees expanded on the following: disincentives in the social security system; low expectations and negative attitudes; a lack of awareness; and poor employment practices.

Disincentives in the social security system

3.12 Interviewees perceived the loss of welfare benefits, direct or indirect, as a result of paid employment as a barrier. What was interesting though was a perceptible shift in thinking from identifying what is often referred to as 'the benefits trap' as THE main barrier to focusing on inadequacies in the knowledge and expertise of employment specialists as the main problem. While it was acknowledged that the benefits system was "complex", it was also felt there was "conflicting information" about this as a main barrier and that there were "ways around the difficulties" although "it requires knowledge".

3.13 Interviewees stressed the importance of 'supported employment' services having access to specialist benefits advice workers. A minority were unconvinced that welfare rights officers had sufficient specialist expertise. When benefits issues were not tackled properly or employment workers operated in ignorance, the outcomes from 'supported employment' fell short and, in some cases, were "undesirable" for instance as one interviewee commented:

"It's not for the fainthearted, but there's lots of services ignore it and then they end up with guys getting jobs at 4 hours a week so they dinnae have to deal with the benefit problem…That's basically what people are saying- that it's too complicated for me- let's no get into that minefield- let's call it permitted work or what another local authority has done, which is to demean work right down to therapeutic activity. It's not even called work anymore"

3.14 There were different views as to what constitutes progress with tackling the benefits agenda. Unlike 'supported employment' services, which were primarily focused on ensuring people received the 'going rate for the job', central government agencies commented on improvements introduced in therapeutic/permitted earnings and safety net arrangements.

Low expectations and attitudes

3.15 Most identified low expectations and negative attitudes as major barriers in getting people into work. Attitudinal barriers across all sectors- employers, families, professionals and people with learning disabilities and/or ASD themselves, were described, though with varying emphases. Most interviewees did not locate the problem with people with learning disabilities and/or ASD but with the attitudes of others:

"There are major attitudinal barriers. Not so much people with learning disabilities but we have care managers, day services staff whose attitudes are barriers. Supported employment isn't embedded in SVQ training and so they don't have the awareness of employment they should have."

3.16 Also, as the above person went on to say, serious attention has to be paid to staff as they influenced families' attitudes. One respondent commented that the only way forward was to tackle this culture at an early stage through working closely with school leavers so that they did not "get into the benefits trap in the first place."

3.17 Comments in respect of individuals with ASD, and more specifically about people with Aspergers Syndrome were interesting on two counts. First, it was suggested that people with Aspergers Syndrome encountered difficulties as a result of applying for jobs for which they were unsuited due to their social disability rather than any lack of technical skill or qualifications. Second, as their disability was largely "hidden", employer attitudes and discrimination was an on-going problem. It was suggested that this was perhaps because Aspergers Syndrome was less visible as a disability than, for example, Downs Syndrome.

Lack of awareness & employment practices

3.18 More than half the interviewees identified a lack of awareness and employment practices as barriers. There was a view, chiefly expressed by voluntary organisations, that local authorities were not doing enough to promote employment within their own ambit and that central bodies were achieving less than they would like to think. However, establishing the infrastructures at a local level was slower. In common with the voluntary agencies that wanted clarity and standards in relation to 'supported employment', central agencies commented that lack of a definition of 'employability' and understanding of its uneven development in some, were problematic.

3.19 Predictably comments on employment practices tended to focus on human resource policies with organisations referring to equal opportunities documents and some additional arrangements such as the appointment of a 'diversity manager'. The question of flexibility in employment was raised as a particular issue for people with ASD. It was said that 'reasonable adjustment' was often less about physical arrangements and more about support in knowing how to socialise and whom to ask if there was a problem. People with ASD would tend to leave a job rather than deal with such situations, which pointed to the need for regular reviews and flexibility in employment practices.

ACHIEVING CHANGE

3.20 The 3 most important priorities for achieving change identified by the interviewees were having central leadership; changing expectations and attitudes; and mainstreaming employment.

Leadership & coordination

3.21 Most interviewees were looking to the Scottish Executive to provide consistent strategic direction, which included establishing a formally recognised framework for 'supported employment' along American lines, as well as systems for monitoring and training. Most, though not all, thought there should be one governmental department in charge and that the department selected should have an employment brief to avoid the risk that such initiatives might not be seen as work. One person captured the spirit of the responses as follows:

"Supported employment has so far been a grassroots development. Now it's older, it needs the structure to grow properly".

3.22 Within the broad agreement that improved co-ordination of employment services was a priority in reducing barriers to employment, two approaches emerged. One could be described as the reduction of duplication and the creation of one-stop shops as both assistance to employers and those seeking work. At a simple level, mutual access to vacancy lists and structurally, the merging of the Benefits Agency and Employment Services into Jobcentre Plus was seen as helpful. Nonetheless, we were told that despite the aspirations of newly created government agencies around 'employability', they were not properly geared up to dealing with people with disability.

3.23 The second approach favoured was a partnership approach through the creation of a forum with dedicated monies from a range of sources to develop and implement an equal access strategy which 'connects' economic development, training agencies and 'supported employment'. The Glasgow Employment Forum was an exemplar of this approach, which we were told, had generated much political interest.

3.24 We did however receive a specific suggestion in relation to ASD that one-stop shops and generic initiatives were not necessarily the way forward in so far as generic disability advisers rarely had the expertise or sufficient time to deal adequately with people with ASD.

Changing expectations and attitudes

3.25 Changing expectations particularly those of professionals, families and agencies was seen as a priority task and likened to the 'culture shift' required to achieve the closure of the learning disability hospitals, and create a normative expectation that people should live and work in the community:

"It's partly about chipping away at these attitudes but also using a sledgehammer! It's not acceptable to me that Social Work for instance who's responsible for support arrangements, does not include employment when putting together person-centred plans".

3.26 There were comments about the importance of changing attitudes and expectations of carers generally in relation to people with learning disabilities and/or ASD, as difficulties that arose in relation to benefits often had implications for the whole family finances and not just those of the person with a disability.

Mainstreaming

3.27 There was widespread support for mainstreaming in the sense of locating 'supported employment' within the world of work where its primary profile would be business rather than welfare focused. However, the view that specialist agencies should complement mainstream organisations rather than be replaced by them was overwhelming. This opinion was particularly strongly felt in relation to ASD where specialist resources were seen as critical to achieving improvement.

3.28 The introduction of person-centred approaches was seen as key in developing mainstream responses. This approach was beginning to show through the whole system whether it was the introduction of personal advisers and key workers in employment agencies, or person-centred planning and the use of direct payments in human service settings.

3.29 Interviewees across the sample identified the need to mainstream funding for 'supported employment' and for improved co-ordination of employment services. There was an acceptance that ensuring employment opportunities for people with disabilities was part of wider agendas. Indeed specialist agencies suggested the concept of 'readiness' had been successfully challenged but people were 'stuck' in the system.

Other priorities for achieving change

3.30 Several other priorities were identified. These included carrying out diversity audits, promoting success stories, tackling the disincentives inherent in the social security and other related systems, and increasing the resources available for 'supported employment'. Matters associated with 'reasonable adjustments' and work place culture were given particular emphasis in relation to ASD where, for instance, people with Aspergers Syndrome might communicate well in writing but not face-to-face.

ENCOURAGING COLLABORATION AT STRATEGIC LEVEL

3.31 Suggestions about achieving collaboration at a strategic level across traditional boundaries such as across Careers, Employment, Equality, Benefits, Disability and Health fell into two broad camps. First, collaboration at a strategic level required leadership and guidance from the top. Second, it required coordination and partnership.

Leadership & guidance from the top

3.32 Almost half the interviewees mentioned a need for leadership and for "practical and pragmatic" guidance from the top. Some talked about the need for a shared vision in which the Scottish Executive would take a lead to ensure that the social justice and employability agendas were articulated within departments and on the ground. Alongside this, and related to it, was the view that there had been recent significant policy changes such as the New Futures Fund, which signified that "the timing is right" to develop a national framework that cuts across disadvantaged groups and different departments so that "everyone buys into it."

Coordination & partnership

3.33 The second set of ideas focused on co-ordination and partnership as a way to achieve 'joined-up working'. Some government organisations mentioned a pervasive cultural change that was taking place nationally within the Civil Service, which supported strategic working across departments: Departments were said to be "encouraged to work that way". Working in isolation was now considered "wrong" and because of the target groups, agencies were increasingly required to "work with an appropriate range of partners to achieve targeted services."

3.34 The requirement for a lead agency to promote and coordinate employment initiatives was identified by the short life working group in Working for a change?. While over half interviewees supported the idea of a lead agency, there was less support for the idea that this should be the Department of Transport, Enterprise and Lifelong Learning ( TELL). Many thought Social Justice or Equalities Unit better placed to do this. One considered it necessary to create a new agency without any "vested interest".

3.35 Two respondents suggested the Glasgow Equal Access strategy provided a good model of partnership working, but required co-ordination by an organisation that was not a service provider. Although not a new idea in principle, it has been described in some detail elsewhere as 'collaborative advantage' (Huxham 1996), it appeared new in the 'supported employment' field.

CHAPTER THREE: SUMMARY OF KEY FINDINGS

  • Despite publication of The same as you? and Working for a change?, key stakeholders believed that employment was still "not yet on the corporate agenda"
  • The 'supported employment' model was considered the most effective way of promoting employment with all disadvantaged groups
  • Promoting employment required dedicated and well defined 'supported employment' services including support for employee and employer
  • The emergence of person-centred approaches; mainstreaming of funding; and to a lesser extent, the Disability Discrimination Act and equal opportunity policies had helped promote employment
  • Making the business case for employing people with learning disabilities and/or ASD was felt to be more significant than organisations' equal opportunities policies
  • A main barrier to employment was felt to be the lack of leadership and not having a consistent framework to commission 'supported employment' and audit performance
  • Low expectations and negative attitudes, lack of awareness, poor employment practices, and disincentives in the benefits system were also identified as barriers
  • There was conflicting information about the 'benefits trap' and a growing opinion that with knowledge and expertise this barrier could be overcome
  • The importance of leadership and a strategic push from the centre was critical: This included developing a national framework for 'supported employment', setting standards, monitoring and promoting training to meet them
  • It was felt that local authorities and central government could do more to promote employment within their own organisations
  • The 3 priorities for achieving change were 1) central leadership and coordination; 2) changing expectations and attitudes; and 3) mainstreaming employment
  • Other suggestions included carrying out diversity audits; promoting success stories; tackling benefits issues; and increasing resources for 'supported employment'
  • Changing expectations (of professionals, families and agencies) was likened to the culture shift required to achieve closure of long stay hospitals
  • As far as lead agency, not all agreed with the short life working group's suggestion that this should be the Department of Transport, Enterprise and Lifelong Learning. Several preferred to locate it within social justice or equalities agendas
  • There were differences of opinion about the benefits of supporting mainstream agencies to get better at catering for everyone's needs or whether both generalist and specialist agencies should co-exist and complement each other
  • There was a more insistent anxiety that generic services would have insufficient expertise and time to provide a successful service to people with ASD.

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Page updated: Tuesday, June 14, 2005