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INVESTIGATION OF ACCESS TO PUBLIC SERVICES IN SCOTLAND USING BRITISH SIGN LANGUAGE

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Appendix one: Shetland and Lewis

A1.1 As an extension to the BSL Access project, it was suggested that some note be taken of the views of Deaf people in the remote areas of Scotland. It was decided to focus this on two centres - Stornoway and Lerwick. As far as can be determined, there has never been any research carried out on these Deaf communities. Indeed at the start of this sub-project it was unclear as to whether there was a community in these locations. This appendix separately describes the situation which was found in Shetland and Lewis. Some of the findings and quotes are already listed in the main report as appropriate. However, it was felt that both locations are different and of sufficient interest to merit a separate explanation of the findings. There are three sources of data - questionnaires, individual interviews and group interviews. These produced slightly different responses and are therefore, described in turn.

A1.2 As a starting point, data from Government Statistics and from previous estimates (Deaf health in Scotland, 1997) were used.

Stornoway and Lewis

A1.3 The total population in Lewis and Harris aged 18 years to 79 years (taken from the SCROL website - census) is 14,685. Using a simple measure of Deaf community membership as those who have attended Deaf schools (see Kyle et al, 1997 for rationale and statistical analysis - this equates to 4.60 per 10,000) we can predict 6.7 adults who are Deaf and would, on the mainland, be members of the Deaf community. By visiting Stornoway, the researcher was able to interview four people and were told of a fifth. Others may be living away from easy reach of Stornoway or may have drifted to Inverness or Edinburgh. There were said to be three Deaf children on the island. An initial informal claim was that there were about 20 Deaf people in the Western Isles - however, this would seem to be a high estimate based on the general population statistics.

A1.4 Perhaps not surprisingly, there is no Deaf club in Stornoway. The previous regular meeting stopped 2 years ago leaving a core of four Deaf people who meet each week in each other's homes. On special occasions they meet in a hotel or go for a meal together - at Christmas and so on. There is very little infrastructure - the social services are staffed by people who do not sign and only one of the Deaf people seems able to communicate with the social worker. He acts as intermediary for the others. The social worker is the agent for the British Deaf News which is passed out to the group. At one time there was a social worker who could sign but that was "three social workers ago". There are no interpreters on Lewis.

A1.5 In theory, the community is served by the Tayside Association for the Deaf in Dundee but no mention was made of any visit or contact. In the event of funerals or other needs for interpreters/social workers, these seem to have come from Aberdeen. There was some contact with Inverness although this was unspecified but the four participants expect to attend the British Deaf Association Congress to be held in Inverness in July 2004.

A1.6 They recalled the visit of the 'British Deaf Association' some years ago to demonstrate videophones but there was no follow up. We were later informed that this had been the RNID.

A1.7 The reports are consistent with an island way of life with work and home as a routine. Hearing people seem to be friendly enough to want to learn to sign, but according to one Deaf participant despite repeated 'teaching' people were never able to say more than 'Hello, how are you?' 'nice weather'. This means that the Deaf people seldom use sign language between their meetings. There is contact by one person with friends in Edinburgh by text either on a minicom or instant messenger (on the Internet) and it is said that Deaf people from Edinburgh have been known to come and stay for a holiday. However, the feeling is of considerable isolation.

A1.8 The form of signing used is considered 'frozen' as if it were a subset of mainland Scottish BSL. Without services in BSL, no accessible media in BSL apart from TV programmes like See Hear and limited interaction with other Deaf people, it would be expected that the use of language would be affected.

A1.9 These interviews were carried out in the home of one of the participants and in the hotel of the researcher. As there was no Deaf club premises and because of the time limitations in the length of stay in Stornoway, the conditions for interviewing were less than perfect. All four contacted took part in the group interview but only three were available at a time when the individual interviews could take place. As in the interviews on the mainland, a set of questions were used (see Appendix 1 & 2) but in many cases there was a lack of experience of the situation and this could not be probed further.

A1.10 There were two males and two females aged between 32 and 55 years. They had all attended Deaf school on the Mainland although one had spent his primary school years in a mainstream school. All learned to sign when at school. None had achieved qualifications from school or had followed any course successfully thereafter.

A1.11 Many of the scenarios used to elicit comments, did not apply to the island. They were not in regular contact with other Deaf people in situations where they could use BSL. The group of four met but with little contact with other Deaf people.

A1.12 We asked about time of day and week when they used BSL, and for most this is minimal being confined to the afternoon/evening when they met. The researcher estimated around 3 hours per week.

A1.13 None of them had experience of the use of interpreters for any of the circumstances listed in the questions. This means that all transactions to do with health or the council or any meetings, had to be transacted in speech and lip-reading, or more likely, were simply avoided.

A1.14 They were not regular readers of the news, although two said they read a magazine once a week or so. They received the monthly British Deaf News. They said they used the Internet about once a month and one used email more frequently.

A1.15 They watched TV with subtitles every day. Once said she watched TV without subtitles sometimes. All watched See Hear, although one only rarely and only one watched Sign Zone, and then only rarely. One had seen a signed video. Two claimed to watch signed news once a week but it is not clear which programme this referred to.

A1.16 All said they used a textphone at least once a week but none used fax. Two used SMS everyday and one used email regularly (everyday - although this contradicts the extent of use claimed in a previous question - which was less). One used the Internet once a week, the others, rarely or never. None had used any video communication device - ie webcam, videophone.

A1.17 They had no contact with any education provision, police, and only one dealt with the Council occasionally. There was some contact with GP and chemist but more often Post Office and Library were the services which they used.

A1.18 The pattern of responses from the closed questions is of limited scope for communication in BSL, limited contact with the outside world and uncertain quality of interaction with local contacts.

A1.19 Only one person had experience of hearing people who signed and it was just 'thank you'.

"Sometimes it can be frustrating as no one can sign and you have to write it down. You have to learn to cope with your frustration and stress. Eventually I got used to it." S1

A1.20 Asked about automated ticket systems, they said predictably, that there were none in Stornoway.

"Nothing here - no train. Everything closed on Sunday even paper shop and no Sunday paper. Now hotel and restaurant opens so that is good. Everyone goes to church but my family doesn't." S2

"Never seen one as no trains around here. In Edinburgh, I once went to get a ticket and the person could sign. I was surprised and it was easy to communicate. It was good. Here with the ferry, I write it down or ask a child to interpret." S1

A1.21 The topic of door entry systems seemed to be less of a problem,

"My partner is home all the time and so my partner hears the doorbell…. No idea how to let you know if I am at your door." S2

"Here at Social Services there is a problem because of voice doorbell. I speak twice and wait for the door to open. There should be a code number for Deaf people." S3

"I have a doorbell light in the lounge which is small and inconvenient. Often a family member will tell me if someone is at the door or I leave the backdoor unlocked. I would SMS you to let you know I was at your door." S1

A1.22 They had no experience of information kiosks nor of staffed services behind a glass screen.

"Never visit them - normally deal with postal forms …. I haven't been to a bank with a glass screen - all are open. I have no experience in Stornoway." S1

"I live in a village, just a Post Office. People know me. One man at the Post Office talks to me - but just says 'how are you?'. He has known me since I was a kid. If I want something , I write it down. Usually we exchange, regular brief messages like, 'weather's cold' - that's all. I wish he could sign." S2

A1.23 People coming to the home are often a problem for Deaf people but one thought it was not a problem and the others used relatives.

"Usually I fix things at home. Sometimes ask a friend - a plumber - to come to fix things. It is very safe around here. No problem." S3

"Yes I had a faulty gas pipe. I contacted my father who called the Council emergency number. The person came and communicated with my father… I am not able to communicate on my own as my English is poor. I need to depend on my father. I wish I could deal with it but how to communicate?" S1

A1.24 Visits to the doctor were problematic. The same issues came up regarding privacy and independence but perhaps even more clearly here than on the Mainland.

"I am used to going on my own - all my life. …. Doctor would write down just one word like 'operation' or 'hospital'. I would show or point to my body where the problem is. If there is a problem with other family members, my partner goes. I wouldn't want an interpreter as it is my privacy. The doctor should sign to communicate with me." S2

"I had a terrible pain here. He (doctor) told me there was nothing wrong. I went back again. Same reply. Six months later I went to see a different doctor, who took an x-ray and told me I had xx (serious problem). So I had treatment in the hospital. There should be a nurse to interpret for Deaf people - not the family." S3

"Yes I don't like to go to the GP but I have to build up confidence to face it. It is OK afterwards. The problem is communication. I write it down. Sometimes I don't understand what doctor has written so I ignore it and carry on. Really need an interpreter but it is a question of my own privacy….. Interpreters are prying (part of their job)….. This lack of communication - I have to accept it - what can I do? I don't want to use other family members as it is my privacy. I don't trust interpreters. I don't trust people." S1

A1.25 Job interviews or longer transactions are where interpreters would normally be used but as on the Mainland, family members or informal interpreting were still common.

"I went to the interview with a relative. They gave me one month training - that was years ago. This relative can sign. There is no interpreter on Stornoway." S1

A1.26 This group had always taken someone with them to waiting areas - a relative - and so the problem of alerting was reduced. The usual issues of lack of communication were re-iterated. Typically deaf people are isolated when in groups of hearing people and this was simply reinforced in the responses in this section.

A1.27 Contact with the police and use of an interpreter would entail someone coming from Edinburgh or Inverness. One person reported that another Deaf person had re-located to the Mainland because of these communication issues.

"Very rarely interpreter comes to Stornoway. Only recently for a wedding and court case….. Yesterday I got a letter from the Job Centre pressuring me to get a job. I couldn't understand the letter, so I went to the social worker who sorted it out for me. But I needed someone to explain to me in sign language." S1

A1.28 Similar themes arose in regard to emergencies with people split on the use of SMS or textphone to reach the police. Difficulties are the delay and risk in the text message not arriving. Most responses included recourse to relatives - ie contact that person and that person makes a voice call to the emergency services.

A1.29 As expected automated voice services on telephone pose a special problem for Deaf people.

"Sometimes it takes too long or the message is rude, so I hang up. …. I ask a family member to phone instead." S3

A1.30 None of this group used fax for direct communication. Although most Deaf people like SMS, there are some who have reservations.

"Brilliant - it is easy to use and you can use anytime, anywhere with a brief message. It is better than minicom/Typetalk. Yes we should have it for all services." S2

"I am too busy for SMS…. although SMS is useful for the doctor or hospital or whatever. But SMS controls your life and I don't like that." S3

A1.31 One of the respondents used the Internet a lot while the others were less sure, mentioning the English content and fear of making a mistake. None of them had any experience of signed videos. Although people mentioned subtitles as their usual experience with television, they also commented on use of signing. Typically they were unhappy about use of 'English' signs and the use of hearing signers.

"I don't always watch the signing as it is English signing. I prefer Deaf signing as it is natural." S1

A1.32 The themes which have appeared in the Stornoway are not greatly different from those elsewhere but there is a general lack of experience and great deal of isolation in the responses.

A1.33 They were unprepared to offer views about other Deaf people and their behaviour. Most answers had to be related to their own decisions and views.

"Really here is a quiet place with a few Deaf people…. It is true we are passive." S1

"It depends on hearing people who frown so I say nothing - it makes me more passive." S4

"Most of the time we just write things down." S2

A1.34 Writing things down for hearing people was not successful.

"When you write it down, hearing people reply but then you don't understand. Hearing people have no patience. So I give up and walk away." S4

A1.35 The alternative might be to try speech and lip reading but this was not successful.

"Definitely write down. It is difficult to lip-read and there is a risk of getting the wrong information. I prefer to write down." S2

"I agree it is better to write down." S1

"I can't lip-read. I asked a person to write down - they refused and walked away from me in a temper. I was thunderstruck." S4

A1.36 The consensus on the development of interpreters to support Deaf people was negative in that it might not be feasible anyway and there was the problem of dependence on an intermediary.

"If you bring an interpreter, the hearing people think you are stupid and need help." S1

"I prefer to deal on my own with staff signing." S2

"Really all need to learn to sign - shop staff, teachers and so on - All"

A1.37 When asked about having information in sign there seemed to be little understanding of what that meant although they concluded that if it could be provided on DVD that would be OK as they all had DVD players. The reactions to the video devices shown where signing was playing on a small computer or handheld was that this was 'brilliant but was it expensive?'

A1.38 As in the question above, when asked why other people had replied that they did not use interpreters at job interviews, the participants here just discussed their own situation.

"At work meetings, there is no interpreter and no access. They ignore me." S4

"At work in the past, they told me to carry on working while everyone else attended a meeting. Afterwards they gave me some brief notes." S2

A1.39 When asked why younger people seemed to use interpreters more than older people, they suggested it was lack of experience and that the fact Lewis was a small island. In regard to the fact that Deaf people claim to read television subtitles (more than books), they mentioned the speed and complexity of the news as a problem ie a factor which would produce a different answer among other Deaf people. But it does seem likely that Deaf people do have more problems in reading subtitles than might be thought - even though they all claim that they use TV subtitles every day.

A1.40 The decline in use of minicom was not explained, rather re-stated as the fact that people now used SMS and email. Although they were surprised to find hearing people also used SMS with abbreviations, they also admitted that only 50% of text messages were understood.

Comments on Stornoway

A1.41 For most of the time the comments of Deaf participants are similar to those reported in Sections 4 and 5 but the extent of experience is much less than in other parts of the study. There is a reluctance to explain why other Deaf people might react in one way or another. Most questions are taken to relate to that person's own experience. As they said in response to the very first group question:

"Really here is a quiet place with few Deaf people …"S1

"Difficult - it is just us … a few Deaf and no interpreter. Just only us." S2

Lerwick and Shetland

A1.42 The population of the Shetland Islands aged between 18 years and 79 years is 15,780 ( SCROL - census for 2001). Based on the calculation of 4.6 per 10,000, this would imply 7.3 Deaf people who would be members of the Deaf community on the mainland.

A1.43 Lerwick has a Deaf and hard-of-hearing club with 25 members. They meet once a month. Of those 25, it was estimated there were 7 who may be signers. During the visit to Shetland, the researcher was able to meet 5 people and was aware of two others in outlying areas, who could not be reached in the time available.

A1.44 Although demographically similar to Lewis, the researcher considered the group on Shetland to be more isolated and more removed from the mainstream Deaf community. There appeared to be no relevant services - no social service support, no interpreters and limited signing among the community.

A1.45 There is an expectation of support from the Aberdeen Society for the Deaf but this has seemed to be inoperable and there were reports of requests for interpreting support to Aberdeen which could not be met. One chaplain for the Deaf from Aberdeen visited each year. This group seem to meet only occasionally.

A1.46 Travel to the mainland is considered very expensive and there seemed to be a greater concern about money among this group. They seem to be un-connected to the Deaf community on the mainland. Opportunities for signing seemed minimal.

A1.47 Interviews were carried out in the hotel, in one person's home and in a social centre. Three participants were met firstly at their club evening, when there was to be an AGM - but for some reason unknown to the participants, this was not taking place. On explaining the project, the arrangements for interviewing could be made quickly and the remaining participants were contacted.

A1.48 Five were interviewed individually and four took part in the group session. There were four men and one woman, aged between 19 and 72 years. Two had jobs in offices, one was a cleaner, one was retired and the other is a painter. Four had been to Deaf school and one had never really attended school at all. One of the four had only been in contact with a Deaf school up to the age of 13 and then was mainstreamed. All said they learned signing at school, although the one who had not attended had learned outside of school - although it is unclear how. The nature of the signing in this case can be studied further.

A1.49 Apart from the monthly meetings of the club, they seemed not to mix with other Deaf people. There is limited opportunity to use sign language. None of the group have used interpreters in any of the list of situations which would be considered possible by Deaf people in other parts of the UK.

A1.50 One claimed to read the newspaper everyday, but the others were not regular readers. Three read a magazine at least once a month. Only one ever read books. Two people said they read the Deaf News (British Deaf News) each month but the others rarely or never saw it.

A1.51 All but one said they watched TV with subtitles and never without. Three said they used teletext information services. Three watched See Hear at least once a month but the others rarely did - often people say that their viewing changed when the programme changed slot to Saturday (from Sunday). Video recording seems inoperable. None of them watched Sign Zone, or Signed news on television and none had seen a signed video.

A1.52 One person said he used textphone everyday and another said once a month. The other did not. Two people used SMS and fax frequently but the others did not use these means at all. Two people said they used the Internet and email but the others did not use it all. None of them had seen a videophone or used a webcam.

A1.53 The general picture here is of serious isolation even though they are surrounded by hearing people.

A1.54 The opening questions concerned how they communicated with other people.

"I use lip-reading and speech or write down. It is often difficult to lip-read people because I am Deaf, so I write it down." L2

"I communicate by lip-reading and speech or I write down by finger 2." L3

"It is hard as no one signs to help me with interpreting . I am frustrated by this especially with the doctor." L4

A1.55 Two people mentioned coming across individuals on the island who could sign - however, it is not clear if this was because of a formal course, or whether it was only finger spelling. Predictably there was almost no experience of automated services for buying tickets. One person mentioned a broken machine in London which cost her money but their response was typical - 'prefer face to face'. People reported writing down to buy a ferry ticket or asking a relative to help.

A1.56 When asked about entry systems, not surprisingly there was no experience but this prompted other comments.

"Social service do not provide any environmental aids to Deaf people. We have to buy it ourselves. Minicom, doorbell light and so on we have to buy from the RNID ourselves." L4

A1.57 Such a situation seems unusual - lack of Social Service support and commercial activities of the Deaf organisation, when almost certainly there is severe need. No one had experience of information kiosks. However, the typical problems appeared when the Deaf person had to deal with staff directly.

"I had a problem with the staff (at an office - bank or Council) - it was difficult to lip-read. They laughed at me when I tried to talk. I asked for a social worker but there was none. I went back to work and asked my boss who agreed to come with me on my next visit. This time the staff behaved differently because I was with my boss. She agreed to come with me in future if necessary." L2

A1.58 In case of need, neighbours are called and when service personnel come to the house, there is limited communication.

"Yes it happened with the washing machine - there was a burst pipe. I ran to the neighbour who called the Council to send a plumber. He came and fixed it while I watched TV and then he went. There was no communication apart from saying 'OK now'. If I was on my own without the neighbour, it would be impossible." L4

A1.59 As with many Deaf people going to the doctor is problematic, although the issues here seem more severe.

"I have a friend whom I taught to sign, This friend helps me phone the doctor and sometimes comes with me. Sometimes I go on my own. It is difficult to communicate with the doctor - I have to lip-read or write down. I only get a brief response. I had an important test and waited for the result by letter - there was none. That was three years ago. Also I had another important test and I am still waiting for the result. I told them I was Deaf and unable to use the phone, so I gave them the number to fax me with the result - no response. It is so hard being Deaf with little support." L2

"Doctor knows me - he can gesture - I point to my body. If different problem, doctor will write down." L3

"It is so hard - there is no one to help with communication. It is so difficult to explain to the doctor what I want to say. It is difficult to do it by writing….. Social worker never helps in Shetland. There is a Deaf club but the social worker never comes to meet us Deaf people to see if we need anything or any help - nothing at all.

Yes I hate going to the doctor because of the communication and I am fed up with waiting in the reception room. I can't relax because they call out the names or the appointments are delayed. I wish they had an announcement light." L4

"I always go with a family member as I am unable to communicate on my own." L5

A1.60 The problems with doctors and potentially with health are extremely serious affecting privacy and independence as well as personal well-being. In longer transactions such as job interviews, an interpreter would have been an option if there were any. One person mentioned contacting Edinburgh for the RNID service; another mentioned a friend who is good in sign language. Another did not have such good experience.

"A lot of times in the past, I did not succeed in interviews with a family member as interpreter; then with my partner, I still failed. I don't know why. Then I decided to learn word processing and computer skills. Then I got a job. It is best to learn practical and not theory. Hearing people are unsure of Deaf people's skills in theory." L3

A1.61 In hospital settings, people seem to think the nurse was better at writing down than the doctor but as is common, Deaf people prefer to take someone with them who can tell when it is their turn (as the names are called out). Otherwise it is difficult.

"Once I broke my arm and I went on my own. I was lost with communication." L2

A1.62 As indicated already, the most difficult circumstance for Deaf people is when surrounded by hearing people on a course or in a meeting. Most of the time, Deaf people try to avoid this because of the feeling of isolation and the teasing.

"Only a few of us in the team, so we can communicate with each other. They tell me what is going on. I will be redundant soon." L3

A1.63 One of the interviewees explained it succinctly.

"There are quite a few people in my workplace. I have never been involved in any meeting." S1

A1.64 The questions about the police did not produce any specifically Deaf related issues and the questions on emergency provoked similar reposes to those already highlighted - Deaf people do not wish to use textphone or Typetalk for such purposes and mostly prefer (at the moment) to ask a hearing person to call as it is more immediate. The hearing person may be a neighbour or a relative. As before people said they were not confident in Typetalk and would like to have some means through SMS. There was little experience of automated voice services - one person said he preferred to type direct. Fax was preferred to minicom on account of speed and cost. People said they were really happy with SMS and could send messages to their partner anywhere and anytime.

A1.65 The interviewees repeated the common complaints about subtitles not being completely reliable and the English being too difficult. They preferred signing for information. Deaf signing was a priority. They had never seen signed video and were unable to comment on that set of questions.

A1.66 The group interview took place with four of the participants after the individual interviews. As indicated in the Stornoway group, the questions to be asked had to be amended a little to simplify and make them more direct. The group interview was shorter as in a number of cases, there was little experience to support the response.

A1.67 When asked why Deaf people were reluctant to take part in this sort of interview, the responses all focused on their own experience of being contacted for this project and not as hoped for, on the topics of Deaf people perceptions and priorities. So it was explained how each person had been contacted and came to know about the project.

A1.68 When asked about preferences for communication and interaction with hearing people, the comments were similar to what has been found elsewhere.

"Of course signing would be first choice." All

"I know it is difficult for hearing who can't sign so I have to write down." L3

"Best to write down and then lip-read otherwise it is more embarrassing if the wrong information is picked up." L4

"Only gesture - it is easier as I am not able to write English" L1

A1.69 The researcher pointed out that in the future is not possible that everyone could sign. Their response again repeated what others have said - they preferred direct communication from hearing people and not interpreters. The resistance to interpreters seemed to be based on some older mythology.

"I don't want interpreters everywhere - they are prying." L3

"Interpreters will gossip around" L2

A1.70 Even after explaining the roles and ethical code of interpreters, people were still not fully convinced.

"Well in future, I am not sure. I prefer people to learn sign language and not have interpreters…." L4

"I can ask hearing people to write it down. A while ago I saw on TV something about a virtual signer - that looked good." L3

"My wife speaks so I am left out and I don't know what is happening." L1

A1.71 When asked about future signed videos and other means to deliver sign language, they shrugged. The researcher explained in more detail demonstrating some examples of portable means for sign language - video, on computers and PDA. They agreed that this would be a step forward but were dubious as to how you could use this on the move. Further explanation of the use of notebook computers or small handheld displays for playing sign language information was thought to be of value. Again the question of cost was raised.

A1.72 When asked questions about the previous results of the project it was clear that these could not be easily answered as people tended to relate the question only to their own experiences and not to searching for reasons why Deaf people had already responded in a different way. For example, when asked why younger Deaf people had reported that they used sign language interpreters more than older people, the responses related directly to Shetland.

"That is a difficult question." L4

"It does not apply to Shetland as there is no interpreter here." L3

"Here is a quiet place" L4

Comments on Lerwick

A1.73 Many of the same issues arise in Lerwick as in Stornoway and many topic explanations emerge in the same way as on the Mainland of Scotland. However, the extent of isolation is much greater since people rarely meet and since they seem unconnected to other Deaf communities. It is obvious that people need to interact in communities but this is happening to such a small extent here that there are serious effects on well-being.

Summary

A1.74 The group in Stornoway seem to exist without 'bothering with hearing people'. They seem unaware of who to ask or how to obtain help and this is perhaps a result of their never having been asked about their needs. They have a sense of belonging to the island and have no anger against hearing people. They blame themselves instead of making demands for access. They seem to feel that because of their Deafness, they have no role to play.

A1.75 The group on Shetland have limited support and even less contact with agencies and Deaf groups elsewhere. This is a huge factor in their daily life. They have no experience with many of the scenarios which were used to elicit comment on the Mainland and they had great difficulty with the questions especially in individual sessions. The sign language used may benefit from further study as there appear to be differences and limitations in it. They are generally unaware of the information about their rights or entitlements.

A1.76 If Deaf people in mainland Scotland experience major difficulties in access to public services, then these two communities have not even begun to know what services might be offered. Although their numbers are very small, it seems reasonable for them to have similar general access as other Deaf people. Given the distances involved even to contact each other, one might have imagined that they would be early users of videophones and visual information. This is not the case and they are probably the most isolated Deaf people in the UK.

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