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Cancer in Scotland: Action for Change:
A guide to securing access to information
04.
DOES YOUR LOCAL PATIENT INFORMATION STRATEGY MEET THE NEEDS OF PEOPLE AFFECTED BY CANCER?
Questions to consider
Rather than seek to set out a list of prescriptive recommendations/actions the sub-group felt it would be helpful instead to set out some important generic and cancer specific questions which should be considered locally by NHS Boards and cancer networks BEFORE looking at plans/proposed actions/solutions. This will also help to focus effort and facilitate the production of a regional cancer network reporting template for patient information.
> What arrangements are in place to identify and promote the availability of cancer patient information/
support locally and/or regionally?
> Who co-ordinates that information?
> Is there a process for reviewing patient information in your area?
> Who is responsible?
> How is that information disseminated?
> Is there/what is the communication training strategy for all relevant staff?
> Is there a record made of the information given to patients? - What does the patient know and understand about their illness?
IT'S HAPPENING ALREADY . . . |
The South East Scotland Cancer Information project, will provide a baseline of available patient information across the Network area. |
> Is there a library or list of patient information available across all Cancer Networks?
> Who has it?
> How can it be accessed by staff (for patients) and by patients and carers?
> Can this information be accessed by patients in their own time, when they want it, tailored to their needs?
> Who updates it?
IT'S HAPPENING ALREADY . . . |
Forth Valley - The patient-held guide to chemotherapy in colon and rectal cancer was commended by CSBS. All colorectal cancer patients who receive chemotherapy are given a copy of this guide. A patient satisfaction survey of this guide has been carried out, and revision of the guide is planned in response to the survey. |
> Who is responsible for tumour specific patient information for each regional cancer network area? The local NHS Board? A specific service or hospital in the area?
> Is patient information included in investment planning for cancer services?
> Is there a mechanism in place for measuring patient satisfaction with the information provided?
> Are there processes in place to measure improvements as a result of local, regional and national patient information initiatives?
IT'S HAPPENING ALREADY . . . |
Ayrshire & Arran Acute Hospitals NHS Trust has developed a Cancer Nurse Steering Group to facilitate the dissemination of best practice amongst cancer nursing services across the Trust and consult with the Lung Cancer Multidisciplinary Team on issues relevant to communication and information provision for lung cancer patients. |
> Is there a process to share and benefit from others' experiences using leaflets or websites adapted as required?
> Will a new patient information leaflet duplicate what is already there? Can existing information leaflets be built on?
> Are there formal and/or informal processes in place to facilitate intra- and inter-departmental communication?
> Are there formal and/or informal processes in place to facilitate communication between different members of the multidisciplinary teams and across different healthcare settings?
IT'S HAPPENING ALREADY . . . |
Argyll & Clyde, Ayrshire & Arran - The Royal Alexandra Hospital Paisley and Crosshouse Hospital Kilmarnock are planning to take part in the Electronic Clinical Communications Implementation (ECCI) pilot project which will help to improve the communication between primary and secondary care. |
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