The Scottish Government

2002

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CONTENTS

ACKNOWLEDGEMENTS
EXECUTIVE SUMMARY
CHAPTER ONE: PEOPLE WITH DEMENTIA, SOCIAL POLICY AND THE LEGAL SYSTEM IN SCOTLAND
1.1POLICY CONTEXT: AUTONOMY AND INCLUSION
1.2 THE IMPORTANCE AND USEFULESS OF RESEARCH INVOLVING PEOPLE WITH DEMENTI
1.3 EXAMINING THE LEGAL SYSTEM FROM THE PERSPECTIVES OF PEOPLE WITH DEMENTIA
1.4 PEOPLE WITH DEMENTIA AND THE USE OF THE LEGAL SYSTEM
1.5 FORMAL SUPPORT FOR DECISION MAKING
1.6 CONCLUSION
CHAPTER TWO: THE PILOT STUDY
2.1 PROCEDURE
2.2 ETHICAL CONSIDERATIONS
2.3 INITIAL RECRUITMENT AND SAMPLING STRATEGY
2.4 REVISED RECRUITMENT AND SAMPLING STRATEGY
2.5 INFORMED CONSENT
2.6 DATA COLLECTION AND INTERVIEW STRATEGY
2.7 RECOMMENDATIONS AND CONCLUSIONS FROM THE PILOT STUDY
CHAPTER THREE: THE MAIN STUDY
3.1 RECRUITMENT AND SAMPLE STRATEGY
3.2 INFORMED CONSENT
3.3 INTERVIEW PROCESS
3.4 ANALYSIS OF DATA
3.5 CONCLUSION
CHAPTER FOUR: QUANTITATIVE FINDINGS ON PEOPLE WITH DEMENTIA AND THEIR USE OF LEGAL INTERVENTIONS
4.1 THE RESPONDENTS
4.2 PEOPLE WITH DEMENTIA WHO HAVE LEGAL INTERVENTIONS
4.3 DSS APPOINTMENTS
4.4 OTHER LEGAL REQUIREMENTS
4.5. DRIVING
4.6. PEOPLE WITH DEMENTIA WHO HAVE NO LEGAL INTERVENTIONS
4.7 CONCLUSION
CHAPTER FIVE: A QUALITATIVE EXPLORATION OF THE EXPERIENCES AND VIEWS OF PEOPLE WITH DEMENTIA AND THEIR CARERS
5.1 DATA ANALYSIS
5.2 FACTORS ASSOCIATED WITH DIAGNOSTIC PROCEDURES
5.3 FORMAL AND INFORMAL PATHWAYS TO INFORMATION AND ADVICE
5.4 HISTORICAL AND CURRENT WAYS OF MANAGING DOMESTIC AND FINANCIAL ARRANGEMENTS
5.5 PERCEIVED NEED FOR FUTURE PLANNING
5.6 CONCLUSIONS
CHAPTER SIX: CONCLUSIONS AND RECOMMENDATIONS
6.1 FEASIBILITY OF METHODOLOGY
6.2 FINDINGS RELATING TO THREE KEY AIMS
6.3 RECOMMENDATIONS: IMPLEMENTATION OF ADULTS WITH INCAPACITY LEGISLATION
6.4 CONCLUSION: PATHWAYS TO INCLUSION
REFERENCES
APPENDIX I) INTERVIEW SCHEDULES
APPENDIX II) LEGAL STUDIES
APPENDIX III) CASE DATA
APPENDIX IV) ALZHEIMER EUROPE - RECOMMENDATIONS FOR MEETING THE LEGAL NEEDS OF PEOPLE WITH DEMENTIA
APPENDIX V) THE NATIONAL STATISTICS SOCIO-ECONOMIC CLASSIFICATION

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